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Stronger Together

Mentorship Program

Real Connection. Shared Experience.

 

The Stronger Together Mentor Program connects individuals and families who are newly navigating a rare retinal disease with those who have already walked this path and are ready to share what they’ve learned.

There’s something powerful about talking to someone who truly understands—the questions, the decisions, the day-to-day adjustments, and the moments no one else quite relates to. This program creates space for those conversations, pairing families in a way that fosters connection, perspective, and steady support.

For individuals or families seeking guidance, it’s an opportunity to connect with someone who’s been there—who can listen, share, and walk alongside you as you find your footing. For individuals or families further along in their journey, it’s a meaningful way to give back, offering encouragement and insight that can make a real difference for someone just beginning.

Because no family should have to navigate this journey on their own—and together, we are stronger.

Stronger Together Mentor Program Guidelines

 

  • At this time, participants must be 18 years of age or older to take part in the program. We hope to expand the program to teens in the future.
  • This program is designed for peer support and shared experience. Mentors are not medical professionals, and medical, legal, or clinical advice should not be given or relied upon.
  • Participation is voluntary, and families engage at their own discretion. The program is not responsible for the outcomes of mentor matches or individual interactions.
  • All mentors are required to complete a criminal background check prior to being matched.
  • Participants are expected to respect confidentiality and not share personal information or stories outside of the mentoring relationship without permission.
  • Communication should remain respectful, supportive, and appropriate at all times.
  • Participants are encouraged to set and honor personal boundaries, including communication frequency and topics discussed.
  • The program is intended to provide connection and encouragement, not crisis support. Participants should seek professional or emergency services when needed.
  • Either participant may request to pause or end a match at any time for any reason.
  • The program reserves the right to decline, pause, or discontinue participation if guidelines are not followed or if it is in the best interest of those involved.
  • Due to the size of the rare disease community, it may take time to find the right mentor match, and while we strive to connect every participant, a match may not always be available. Our team is committed to making thoughtful pairings that best support each individual and family’s needs.

 

Additional guidelines apply. After your application follow up call is completed, you will receive a Stronger Together Mentorship Guidebook including all guidelines and frequently asked questions. The list above is intended to provide a general overview of key guidelines of the program.

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