{"id":6535,"date":"2024-10-22T21:47:42","date_gmt":"2024-10-22T21:47:42","guid":{"rendered":"https:\/\/prrf.org\/?page_id=6535"},"modified":"2025-05-14T06:29:14","modified_gmt":"2025-05-14T06:29:14","slug":"parents","status":"publish","type":"page","link":"https:\/\/prrf.org\/nl\/parents\/","title":{"rendered":"Voor ouders"},"content":{"rendered":"
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Voor ouders<\/h1><\/div>\n
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\u201cAs long as there are other retinal diseases without a cure, we just can\u2019t stop.\u00a0<\/b>As a PRRF board member and leader of the Family Advisory Committee, I want to make sure any parent experiencing a diagnosis like this feels hope and finds a path forward. So, while the researchers are seeking out cures and the doctors are treating patients, I decided to be someone that answers a phone call or email from a parent, collects helpful resources for our website, and responds to social media posts to offer some peace of mind to other families. Donna, as a special educator, is passionate about sharing her educational advocacy expertise with families to help them navigate special needs and services for their children.<\/p>\n

Our family\u2019s commitment is not just for our son or people with retinoschisis, but it\u2019s for every child with a retinal disease.\u00a0We do it because we feel the pain of the families and know how incredibly difficult this journey is. We do it because we have hope for a cure.<\/b>\u201d <\/b>\u2013 Chuck and Donna Walls<\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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