{"id":7181,"date":"2024-11-24T05:00:44","date_gmt":"2024-11-24T05:00:44","guid":{"rendered":"https:\/\/prrf.org\/?page_id=7181"},"modified":"2025-05-19T17:37:30","modified_gmt":"2025-05-19T17:37:30","slug":"home-2","status":"publish","type":"page","link":"https:\/\/prrf.org\/nl\/","title":{"rendered":"HOME"},"content":{"rendered":"
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Hoop voor visie<\/h1><\/div>

Welkom bij de Pediatric Retinal Research Foundation<\/h2><\/div>

Hoop koesteren: gezinnen ondersteunen en streven naar behandelingen voor pediatrische netvliesaandoeningen<\/h3>

The mission of the Pediatric Retinal Research Foundation (PRRF) is to support the community of families impacted by blinding pediatric retinal diseases and champion the quest for cures.<\/p>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>

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Meer informatie over ons<\/span>\n \n <\/svg> <\/span> <\/a><\/span><\/h4><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t
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Onze focus<\/h1><\/div>

Pediatrische netvliesaandoeningen<\/h2>
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Ons onderzoek<\/span>\n \n <\/svg> <\/span> <\/a><\/span><\/h4><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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Pediatrische netvliesaandoeningen \/ vachtaandoeningen<\/span><\/a>\n\t\t\t
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Eye Icon<\/span><\/a>\n <\/path>\n <\/svg><\/span><\/span><\/div>\n\t<\/div>\n
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Ziekte van Jasjes<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t
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Pediatrische netvliesaandoeningen \/ retinoschisis<\/span><\/a>\n\t\t\t
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Eye Icon<\/span><\/a>\n <\/path>\n <\/svg><\/span><\/span><\/div>\n\t<\/div>\n
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Aangeboren X-gebonden
\nRetinoschisis<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t
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Pediatrische netvliesaandoeningen \/ norrie disease<\/span><\/a>\n\t\t\t
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Eye Icon<\/span><\/a>\n <\/path>\n <\/svg><\/span><\/span><\/div>\n\t<\/div>\n
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FEVR<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t
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Eye Icon<\/span><\/a>\n <\/path>\n <\/svg><\/span><\/span><\/div>\n\t<\/div>\n
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Norrie
\nZiekte<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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Pediatrische netvliesaandoeningen \/ pfvs<\/span><\/a>\n\t\t\t
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PFV Syndrome<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t
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Pediatrische netvliesaandoeningen \/ ROP<\/span><\/a>\n\t\t\t
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Eye Icon<\/span><\/a>\n <\/path>\n <\/svg><\/span><\/span><\/div>\n\t<\/div>\n
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ROP<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>
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Pediatric retinal diseases \/ stickler syndromes<\/span><\/a>\n\t\t\t
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Stickler Syndromen<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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Bronnen<\/h2>
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\n \n \"female\n <\/a>\n <\/div>\n <\/div>\n <\/div>\n <\/div>
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Voor ouders<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n
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Verken<\/span>\n \n <\/svg> <\/span> <\/a><\/span><\/h4><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t
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\n \n \"Visually\n <\/a>\n <\/div>\n <\/div>\n <\/div>\n <\/div>
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Voor jonge volwassenen<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n
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Verken<\/span>\n \n <\/svg> <\/span> <\/a><\/span><\/h4><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t
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\n \n \"Surgeon\n <\/a>\n <\/div>\n <\/div>\n <\/div>\n <\/div>
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Voor medische professionals<\/h3>\n\t<\/div>\n<\/div>\n\n\n\n
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Verken<\/span>\n \n <\/svg> <\/span> <\/a><\/span><\/h4><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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Verhalen van hoop<\/h2><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t
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“<\/div>

I have learned to educate the general public who might not have much experience dealing with people with disabilities. Instead of getting frustrated, I invite them to ask questions and become allies to the disabled community. <\/span><\/p>Gretchen<\/span><\/span><\/blockquote>

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Even with his diagnosis he continues to persevere and not let it hold him back. He\u2019s a very active young man who loves doing taekwondo and playing video games. <\/span><\/p>Dez<\/span><\/span><\/blockquote>

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Performing gave me a purpose and strength I didn\u2019t know I had. For once I wasn\u2019t \u201cthe blind girl\u201d I was \u201cthe girl on the stage.\u201d Performing made me a stronger person. I was able to love myself and finally accepted my place as a disabled person which I had always felt ashamed of before. <\/span><\/p>Julianna<\/span><\/span><\/blockquote><\/div><\/div><\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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Engageren en geven<\/h2><\/div>\n\t
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