{"id":8503,"date":"2025-09-23T21:05:26","date_gmt":"2025-09-23T21:05:26","guid":{"rendered":"https:\/\/prrf.org\/?p=8503"},"modified":"2025-11-24T22:31:41","modified_gmt":"2025-11-24T22:31:41","slug":"finding-hope-and-community-lisa-and-arias-journey-with-prrf","status":"publish","type":"post","link":"https:\/\/prrf.org\/zh\/finding-hope-and-community-lisa-and-arias-journey-with-prrf\/","title":{"rendered":"Finding Hope and Community: Lisa and Aria\u2019s Journey with PRRF"},"content":{"rendered":"<div id=\"fws_69e3ad973245f\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\"><\/div><\/div>\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n<div class=\"sqs-html-content\">\n<h2 style=\"text-align: left;\">Season 3 | Episode 38:<\/h2>\n<h4 style=\"text-align: left;\">September 23, 2025<\/h4>\n<\/div>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-8509 alignright\" src=\"https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-300x300.png\" alt=\"Graphic of a mother holing her daughter's hand as they hike through a leafy forest with mountains in the background, with the text &quot;Listen Now Episode 38, Finding Hope and Community: Lisa and Aria's Journey with PRRF.&quot; \" width=\"300\" height=\"300\" srcset=\"https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-300x300.png 300w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-1024x1024.png 1024w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-150x150.png 150w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-768x768.png 768w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-12x12.png 12w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-140x140.png 140w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-100x100.png 100w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-500x500.png 500w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-350x350.png 350w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-1000x1000.png 1000w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria-800x800.png 800w, https:\/\/prrf.org\/wp-content\/uploads\/2025\/10\/Ep38_Aria.png 1080w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>In this heartfelt episode of <em>Through Our Eyes<\/em>, host Nicole Giudici welcomes Lisa LoVasco and her daughter Aria to share their emotional journey navigating Aria&#8217;s diagnosis of a rare retinal disease, FEVR. As a new mom, Lisa recalls the overwhelming flood of unfamiliar information during that first doctor&#8217;s visit, wishing for a simple, doctor-backed resource folder to guide families away from the chaos of online searches. Feeling powerless in the face of a condition with no family history, Lisa quickly sought community through PRRF\u2014initially via early connections and Dr. Capone&#8217;s guidance\u2014turning involvement into a healing process. For over five years, they&#8217;ve embraced events like the Hope for Vision Walk and Family Connection Conference, transforming isolation into tangible action for research and support.<\/p>\n<p>The episode shines with stories of resilience, like Aria&#8217;s instant bond with Mia Dobin, another young girl with FEVR, sparked at a conference meet-and-greet that felt like a &#8220;dream come true.&#8221; Their friendship has blossomed through playdates, shared adventures, and mutual parent support, easing the loneliness of being &#8220;the only one&#8221; at school or in the neighborhood. Lisa, a Family Advisory Committee member, offers advice for new families: stay hopeful, lean on doctors for facts, and seek community to combat the unknowns. Aria chimes in with walk highlights\u2014donuts, hill races, and glittery hair\u2014while sharing her vibrant life of choir, violin, dance, and upcoming 11th birthday sleepover.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><iframe loading=\"lazy\" src=\"https:\/\/play.libsyn.com\/embed\/episode\/id\/38331400\/height\/192\/theme\/modern\/size\/large\/thumbnail\/no\/custom-color\/11B6F0\/time-start\/00:00:00\/hide-show\/yes\/hide-playlist\/yes\/hide-subscribe\/yes\/hide-share\/yes\/font-color\/FFFFFF?wmode=opaque\" width=\"100%\" height=\"192\" allowfullscreen=\"allowfullscreen\"><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><\/iframe><\/p>","protected":false},"excerpt":{"rendered":"<p>Season 2 | Episode 38: Sept 23, 2025 Nicole Giudici welcomes Lisa LoVasco and her daughter Aria to share their emotional journey navigating Aria&#8217;s diagnosis of a rare retinal disease, FEVR.<\/p>","protected":false},"author":22,"featured_media":8509,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","om_disable_all_campaigns":false,"footnotes":""},"categories":[37],"tags":[],"class_list":{"0":"post-8503","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-podcast"},"_links":{"self":[{"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/posts\/8503","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/users\/22"}],"replies":[{"embeddable":true,"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/comments?post=8503"}],"version-history":[{"count":7,"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/posts\/8503\/revisions"}],"predecessor-version":[{"id":8615,"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/posts\/8503\/revisions\/8615"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/media\/8509"}],"wp:attachment":[{"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/media?parent=8503"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/categories?post=8503"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/prrf.org\/zh\/wp-json\/wp\/v2\/tags?post=8503"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}