A rare retinal disease diagnosis can feel scary at first. But when you meet a community who shares their experience and insights, things become a lot more manageable.
#ThroughOurEyes #podcast #awareness #LowVision #blind #inspiration #prrf #raredisease #RetinalDisease #pediatricretinaldisease #empowerment
In this heartfelt episode of the "Through Our Eyes" podcast, host Luisa Recchia sits down with Breyanna Soper (formerly Willett) to discuss her recent wedding journey. Brianna, who has been visually impaired since her childhood due to retinitis pigmentosa, shares how her condition influenced the wedding planning process—from selecting her dress with the help of her supportive uncles to relying on her husband Matt for visual descriptions of centerpieces and other details. She highlights the importance of photography and videography in capturing moments she could later experience up close, like seeing Matt’s reaction as she walked down the aisle. Brianna also touches on unique adjustments, such as memorizing her wedding vows and navigating the challenges of changing her name post-marriage. The episode wraps up with a look into her future plans, including saving for a house and exploring options for starting a family. Tune in for an inspiring conversation about love, resilience, and celebrating life’s big moments.
Don’t miss details on the upcoming Family Connection Conference on April 26, 2025!
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Listen to all episodes and connect with us here!: linktr.ee/throughoureyespodcast
New: Pediatric Retinal Research Foundation
#throughoureyes #podcast #awareness #lowvision #blind #inspiration #prrf #raredisease #retinaldisease #pediatricretinaldisease #empowerment
Spotlight on Familial Exudative Vitreoretinopathy (FEVR) ahead of #rarediseaseday. www.prrf.org/fevr
Every journey is different, but one thing’s for sure: our community is our biggest strength.
2025 Fundación para la Investigación de la Retina Pediátrica.
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