The Loneliness of an Orphan Disease Diagnosis
A rare disease is defined as any disease that affects a small percentage of the population, often fewer than 200,000 people in the United States. …
PRRFDicembre 16, 2022
There’s Something About Twins
There seems to be something about twins that never fails to draw intrigued glances and the question, “Identical or fraternal?” Some claim it is that famed…
Jennifer Z.Novembre 16, 2022
Sibling Revelry
“If you want to know how to treat a child with special needs, look at their sibling…they will show you.” I have no idea who…
Stephanie BrennellOttobre 16, 2022
The Resilient Miracle
I was fifteen. It was the first day of my freshman year of high school. I was nervous, overwhelmed, and stressed out. I wasn't confident…
Jules H.Settembre 16, 2022
Fish Ladder Story: Tanis Hooker
Tanis has never let his blindness prevent him from moving up the fish ladder of life. He learns from every experience and uses each opportunity…
Patrick J. Droste MS MDAgosto 19, 2022
What to Expect When You Don’t Know What to Expect
Sit back and be amazed. Your child is a gift. All children are amazing and special in their own ways. All children are unique. We have three boys, and…
Stephanie BrennellLuglio 16, 2022
Seeing the Possibilities
The Roman poet Horace once said, “Adversity has the effect of eliciting talents which in prosperous circumstances would have lain dormant.” Ever since I stumbled…
Jennifer Z.Giugno 16, 2022
Fish Ladder Story: Brandon Werner
Brandon has never let his visual impairment keep him from “moving up the fish ladder of life”. He never stays at one level very long. …
Patrick J. Droste MS MDMaggio 16, 2022
Uncovering Creativity: Miles Scharfenberg
Miles has been swimming up the Fish Ladder of Life since the very beginning. He continues to rise up the ladder to higher waters; Miles…
Patrick J. Droste MS MDAprile 16, 2022
The Fish Ladder of Life for the Visually Challenged Individual: Michael & Elizabeth
Despite laser treatment at 3 months of age, Michael and Elizabeth’s ROP progressed at a very aggressive rate and multiple surgeries were performed on each…
Patrick J. Droste MS MDMarzo 16, 2022