Parent Stories

A large group of people poses for a photo, standing on the grass with trees in the background. This group is here at the 2025 Hope for Vision Walk to support Aria and Lisa.

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How One Michigan Family Built Connections And Inspired Global Support For Retinal Research

Every step brought hope for children living with rare retinal diseases: How the Hope for Vision walk changed the life of one family, and how...

Annie RubinJanuar 15, 2026

A woman sitting on the floor with her head in a laundry basket full of clothing

Blog Parent Stories Personal Stories

Stolpern Sie eine Meile in unseren Schuhen

We were never given a choice, but if we had been, I would choose Sean all over again, exactly as he is. Because even though...

Stephanie BrennellMärz 25, 2023

Blog Parent Stories Personal Stories

High School und College mit Ihrem jungen erwachsenen sehbehinderten Kind bewältigen

The “experts” never say anything about how your role as a parent changes when your child becomes a young adult. Out of all the books...

Chuck Walls31. Januar 2023

A baby in a car seat with a patch over one eye

Blog Parent Stories Personal Stories

Die Einsamkeit der Diagnose einer seltenen Krankheit

A rare disease is defined as any disease that affects a small percentage of the population, often fewer than 200,000 people in the United States. ...

PRRFDezember 16, 2022

Three smiling brothers, one visually impaired, and a dog on a couch

Blog Parent Stories Personal Stories

Schwelgerei unter Geschwistern

“If you want to know how to treat a child with special needs, look at their sibling…they will show you.” I have no idea who...

Stephanie BrennellOktober 16, 2022

Visually impaired teenager sitting on a stone wall in front of plants

Blog Parent Stories Personal Stories

Das Wunder der Resilienz

I was fifteen. It was the first day of my freshman year of high school. I was nervous, overwhelmed, and stressed out. I wasn't confident...

Jules H.September 16, 2022

A young boy in red glasses and blue overalls lays on a couch on top of a brown dog

Blog Parent Stories

Was Sie erwarten können, wenn Sie nicht wissen, was Sie erwarten können

Sit back and be amazed. Your child is a gift. All children are amazing and special in their own ways. All children are unique. We have three boys, and...

Stephanie BrennellJuli 16, 2022

Young child holding the finger of a parent

Blog Parent Stories Personal Stories

Focus on Advocacy

As soon as we faced the realization that Juliana would live a life of complete darkness, our first worry was how she would be able...

Karen HooglandSeptember 15, 2021

Young parents and their visually impaired baby daughter standing outside in front of bushes and a tree

Blog Parent Stories Personal Stories

The Halbert’s Story

Presley has been learning how to walk with a cane and will soon begin learning Braille. She amazes us every day with how easily she...

The HalbertsAugust 15, 2021

Parents and four boys standing in front of a marina with boats

Blog Parent Stories Personal Stories

Meet Board member Charles “Chuck” Walls

When Chuck’s third child, Collin, sat too close to the TV, he and his wife thought that was merely unusual. The day after Christmas, when...

PRRFJuli 15, 2021

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How One Michigan Family Built Connections And Inspired Global Support For Retinal Research

Stolpern Sie eine Meile in unseren Schuhen

High School und College mit Ihrem jungen erwachsenen sehbehinderten Kind bewältigen

Die Einsamkeit der Diagnose einer seltenen Krankheit

Schwelgerei unter Geschwistern

Das Wunder der Resilienz

Was Sie erwarten können, wenn Sie nicht wissen, was Sie erwarten können

Focus on Advocacy

The Halbert’s Story

Meet Board member Charles “Chuck” Walls

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