Parent Stories Archives

A woman sitting on the floor with her head in a laundry basket full of clothing

Camine una milla en nuestros zapatos

We were never given a choice, but if we had been, I would choose Sean all over again, exactly as he is. Because even though...

Stephanie Brennell25 de marzo de 2023

Blog Parent Stories Personal Stories

Cómo ir al instituto y a la universidad con su hijo adulto con baja visión

The “experts” never say anything about how your role as a parent changes when your child becomes a young adult. Out of all the books...

Chuck Walls31 de enero de 2023

A baby in a car seat with a patch over one eye

Blog Parent Stories Personal Stories

La soledad de un diagnóstico de enfermedad huérfana

A rare disease is defined as any disease that affects a small percentage of the population, often fewer than 200,000 people in the United States. ...

PRRF16 de diciembre de 2022

Three smiling brothers, one visually impaired, and a dog on a couch

Blog Parent Stories Personal Stories

Juerga entre hermanos

“If you want to know how to treat a child with special needs, look at their sibling…they will show you.” I have no idea who...

Stephanie Brennell16 de octubre de 2022

Visually impaired teenager sitting on a stone wall in front of plants

Blog Parent Stories Personal Stories

El milagro resistente

I was fifteen. It was the first day of my freshman year of high school. I was nervous, overwhelmed, and stressed out. I wasn't confident...

Jules H.16 de septiembre de 2022

A young boy in red glasses and blue overalls lays on a couch on top of a brown dog

Blog Parent Stories

Qué esperar cuando no se sabe qué esperar

Sit back and be amazed. Your child is a gift. All children are amazing and special in their own ways. All children are unique. We have three boys, and...

Stephanie Brennell16 de julio de 2022

Young child holding the finger of a parent

Blog Parent Stories Personal Stories

Focus on Advocacy

As soon as we faced the realization that Juliana would live a life of complete darkness, our first worry was how she would be able...

Karen Hooglandseptiembre 15, 2021

Young parents and their visually impaired baby daughter standing outside in front of bushes and a tree

Blog Parent Stories Personal Stories

The Halbert’s Story

Presley has been learning how to walk with a cane and will soon begin learning Braille. She amazes us every day with how easily she...

The Halbertsagosto 15, 2021

Parents and four boys standing in front of a marina with boats

Blog Parent Stories Personal Stories

Meet Board member Charles “Chuck” Walls

When Chuck’s third child, Collin, sat too close to the TV, he and his wife thought that was merely unusual. The day after Christmas, when...

PRRFjulio 15, 2021

A black and white photo of three smiling young girls sitting on a couch. The youngest is visually impaired

Blog Parent Stories Personal Stories

A Letter From Bev Hughes

My husband Rob and I were absolutely thrilled to welcome our third baby girl Rachael into our family. When she was 5 weeks old, we...

PRRFmayo 15, 2021

Recent Social Posts

2025 Fundación para la Investigación de la Retina Pediátrica.

Español de México

Parent Stories

Camine una milla en nuestros zapatos

Cómo ir al instituto y a la universidad con su hijo adulto con baja visión

La soledad de un diagnóstico de enfermedad huérfana

Juerga entre hermanos

El milagro resistente

Qué esperar cuando no se sabe qué esperar

Focus on Advocacy

The Halbert’s Story

Meet Board member Charles “Chuck” Walls

A Letter From Bev Hughes

Suscríbase a nuestro boletín Sightlines

SUSCRÍBETE

Recent Newsletters

Recent Social Posts

Suscríbase a nuestro boletín

SUSCRÍBETE

DONAR