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Listen to the Kids: Advocacy, ROP, and Life as Sam of Mrs. Chaos

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Season 3 | Episode 54

September 29, 2026

Sam didn’t expect to leave her daughter’s eye appointment with a diagnosis of her own. But three days after bringing her premature daughter home from the NICU (where ROP had already become part of their story), she mentioned some symptoms to the ophthalmologist and was seen an hour later with a detached retina.

In this episode, Sam — a special education teacher, mom of three, and the creator behind @MrsChaos212 on social media — shares the honest, funny, and sometimes overwhelming reality of navigating vision challenges as both a parent and a patient. 

Her message to every parent: when we really listen to our kids, we can advocate for them in life-changing ways.

You can find Sam on TikTok, Instagram, Facebook and YouTube at @MrsChaos212.

Want to be a guest on the podcast? If you or someone you know has a story to share — whether you’ve experienced a pediatric retinal condition yourself or are raising a child who has — we’d love to hear from you. Reach out to us at throughoureyes@prrf.org.

You can find more episodes and ways to get involved with the Pediatric Retinal Research Foundation here: https://linktr.ee/throughoureyespodcast 

Transcript

Luisa Recchia: [00:00:00] Welcome to Through Our Eyes, a podcast from the Pediatric Retinal Research Foundation, where we share the personal stories of individuals and families navigating childhood vision conditions. Today, I’m joined by Sam, the creator of Mrs. Chaos. Her daughter’s vision journey began with retinopathy of prematurity, also known as ROP.

Then, in an unexpected twist, our guest experienced a retinal detachment of her own just three days after bringing her daughter home from the NICU Over the past few years, she has balanced her own medical care with advocating for her daughter’s changing vision needs. Through Mrs. Chaos, she shares the honest, sometimes difficult, and often surprisingly funny moments of their family’s journey. Today, we’ll talk about parenting through uncertainty, becoming an advocate, finding community, and making room for humor and joy, even when life feels, like, a, a little [00:01:00] chaotic.

Sam, welcome to Through Our Eyes. We’re so glad to have you with us.

Would you introduce yourself and tell us a little bit about your family? 

Sam: Sure. So my name is Sam. I go by MrsChaos212 on the internet. Um, you can find me on TikTok, on Instagram, Facebook, all at that handle.

But I am a mom to three young girls, and I love to share stories about our family and just the everyday life that is being a mom with three young kids. I am a full-time teacher, so I, I, in the special education world, I teach in a middle school ELA or English Language Arts. And yeah, so I have, like I said, I have three girls.

I have a seven-year-old, a six-year-old, and a, a newly toddler two-year-old, and it’s just we spend a whole lot of our time having fun. My middle daughter is, well, was born prematurely, and she kinda taught us how to fi- to take the days and the little wins and [00:02:00] how to find celebration and victories in the small things, and we’ve just since her birth have carried on that, that joy and sense of humor that comes with being a parent with young kids and even through, through those daily challenges as well.

Luisa Recchia: Yeah. So your daughter’s vision journey began with, uh, retinopathy of prematurity, or ROP. Is that correct? 

Sam: Yeah. Yeah. Mm-hmm. So we were very fortunate. She was born at 32 weeks, um, due to I had HELLP, and she was growth restricted. So when she was born, our NICU journey, we were there for about six- 65 days. And we were very, very fortunate that she was a feeder and a grower.

So she was just there to … We were waiting for her to hit four pounds so she could go into a car seat to get discharged. But part of our journey … And I know a lot of NICU parents experience this as well, she would have, uh, bradycardiac episodes where, you know, her heart rate and oxygen would s- would slow [00:03:00] down.

And because of that, she required oxygen support for extended time. Like I said, we were very fortunate that she didn’t need it for actual breathing. She just needed it as the, the doctor explained it to us, to keep her agitated, to keep her heart rate up, and for, from getting, her getting too sleepy, but that did trigger ROP.

Um, when she was about three weeks old they discovered it, and we have been following kind of this v- this vision journey since then. Ours fortunately at this, this s- stage has a pretty happy ending and, or like we’re at a happy place that we’ve been able to maintain her sight and her vision and support, but not without- challenges and struggles through the way.

Luisa Recchia: What did you know about ROP at the time, and, uh, what have you learned along the way? 

Sam: So it was, we were, our daughter [00:04:00] was born during COVID, so it was June 2020. Ah. And during it, it, that, for us, dramatically changed our journey through the NICU because our interactions with other humans were very limited, especially since the s- being in, in the NICU where everybody is immunocompromised, my husband and I weren’t ever allowed to visit at the same time.

So the two of us couldn’t be in the room at the same time through the entire time we were in the NICU. So when we found out our daughter had ROP, it was literally somebody left a piece of paper to us with a picture of her eyes on, like, the little nightstand they had in her room. And I remember asking the nurse, like, “Why is somebody looking at my daughter’s eyes?”

It didn’t make sense to me that I was like, “She’s 2 pounds. Why is somebody examining her eyes because she’s having a hard time eating?” And it was our [00:05:00] nurse who sat down and explained to us that the retina was just underdeveloped, and sometimes, especially when you have on oxygen, s- children will need a little bit more time for their retinas to develop.

But we were unfortunately at a very… It was a frustrating time for us because we didn’t really have access to the ophthalmologist who was seeing our daughter daily because we weren’t allowed to be in the room during the exams because it was COVID. So it wasn’t until we were discharged, unfortunately, in our area there’s a lack of pediatric ophthalmologists, so we had to see an ophthalmologist who also saw pediatrics, who finally somebody explained to us what was going on with her eyes that really we’re monitoring.

Um, we were very fortunate. She stayed between a level two and level three for most of her journey that there was discussion of, like, laser treatment. But we [00:06:00] didn’t have to go there. But we, it was, for us, we were completely shocked that our daughter, who was in the NICU because she couldn’t do the suck, swallow, breathe, was getting eye exams.

Luisa Recchia: Tell us about you. What happened just a few days after your daughter was discharged? 

Sam: Yeah, so and it’s not funny, but now looking back at it, we can almost laugh that I have my sight today because my daughter had ROP.

It- we were, I took her to the ophthalmologist, and he was in this conversation of him explaining ROP and what the long-term impacts would, could potentially be with her retina and things. You know, he was just giving us like, “Hey, in the next 10 years, these are things I want you to look for. If she says things about spots and dots, or she loses parts of her vision.”

And as he was explaining it to me, I was going, ” I have that right now. I have dots. [00:07:00] I keep getting these, these sparkly lights in my eye. I have a part of my vision that I can’t see.” And it was like, And I always thought because I had preeclampsia that turned to HELLP, I thought my dots were related to the high blood pressure, um, and that my body was still recovering from the trauma that was birth.

I thought it was related to that. So I actually went to the front desk and said, as we were, we were leaving, I was like, “I think I need to also make an eye appointment for myself. I can’t see out of one part of my eye.” And they were able to get me in an hour later, where I was diagnosed where I had detached my retina.

So fortunately, it was mac on. It was at about 40%, and they were able to repair it right then in the office, and then- Four day, it was about four days after we brought my daughter home from the NICU, I was recovering from a detached retina, [00:08:00] having to, nurse my daughter and laying down.

I had to lay on my left side for it to correct for the next seven days. So after we had this long extended NICU journey, I then immediately was recovering from a detached retina. And as she was seeking treatment and observations for ROP, I was going , we would go to mommy-daughter retina appointments, that we would be able to book them together and go through this healing eye journey through time.

So it, it was, it, like, I wouldn’t wish any sort of eye disorder or disease on anyone, but having, while my daughter was going through ROP, that is something that because we met with the ophthalmologist and had those conversations, and I was like, “These are symptoms I’m having that are all of a sudden are of conc- He’s saying they’re of concern.

I should take them as concern as well.” And made an appointment and unfortunately detached my [00:09:00] retina. But because they were able to act so quickly, they restored my vision. 

Luisa Recchia: Wow. So what is your vision like today? 

Sam: So I, we discovered after I detached my retina, we discovered that I actually have uveitis, and that I’ve probably been wor- dealing with this for a w- a while.

Um, my eyes, my retinas have been swelling. So I did need steroid treatments bimonthly for about 18 months in order to reduce the swelling in my retina. Knock on wood, I have been in remission for about two years now. But the steroid shots did destroy my lenses, so at the age of 35 I had cataract surgery.

But I was able to get the panoptic lenses, so I, every day, I know other people who have detached their retina, but I am 38 years old now. I’ve had cataracts. I’ve had multiple eye procedures. And with a detached retina, I actually have [00:10:00] 20/20 vision. And I have no blind spots. I can see almost perfectly.

The only thing I lost was because of the cataracts, I lost my, like, e- extremely close near sight, and every so often if I’m doing, like, needlepoint work I need to throw on a pair of cheaters for, like, a little prescription. But it is, it honestly is because we were in the right place at the right time that I was able to, to restore my vision and get it to where it is today, and then we just manage, manage the symptoms that come with uveitis.

But we’ve been in a good place, so. 

Luisa Recchia: That’s great, great, great news. How do you find yourself advocating for your daughter, though? 

Sam: So we actually have, we’re, we are back on our eye journey. She has, she just entered first grade, um, and when she entered kindergarten, she was making a whole lot of nonsense stories.

She was coming home with nonsense stories that she couldn’t see the letter A [00:11:00] on the board. She couldn’t see when she was at the blue table. Uh, she couldn’t see, like, the position of the room. And I, so I finally took her to, just to an optometrist to get her eyes checked where y- I have. I’ve shared this story where she kind of argued with the doctor the entire time.

He had put up a picture of a butterfly, and he asked what animal it was, and she said it was a cheetah. And he was like, “It has wings.” And she was like, “It, but it’s orange and black. It’s a cheetah, and, and it’s, now it’s just a flying cheetah.” So we kind of this, through this entire time, we realized we’re like, I’m not 100% sure that her diagnosis and prescription was the same, but we’ll give it some time.

And then she started to explain in class some of those symptoms of, again, with her retina. Mm-hmm. So she was talking about sparkly pants at school, and she was talking very aware of how many lights that were in the classroom that were on, but she was seeing either more or less [00:12:00] depending on where she was positioned in the room.

And I literally called my pediatrician and I said, ” This sounds crazy, but my daughter is consistently complaining of sparkling pants. Can you see her?” I, like, I, and it’s, it sounds, I think when we look at pediatrics and kids, especially my daughter, we always joke that she’s not a reliable narrator, that the stories she tells aren’t n- necessarily rooted in facts.

But when she is consistent in c- explaining symptoms, she is telling us something is going on, and we need to listen to her, and we need to investigate even more, to figure out what she needs. So we actually found out that she is having ocular migraines. We are- Mm … continuing to go down to see, she actually goes next week to the ophthalmologist for another appointment to see what’s going on, if there’s anything going on with her retinas.

But in these [00:13:00] descriptions and those keywords with the sparkly pants that were, have always stayed in my mind from her ophthalmologist when she was younger, we actually found out she has a seizure disor- disorder. And just this idea of listening to my daughter and her teacher saying, “She’s complaining about her pants being sparkly,” and consistently doing that over a couple of weeks and taking that seriously, letting her know that she has a voice for her body.

E- she might not know how to communicate those symptoms, but it’s r- it’s really important to, as the adult and caregiver in her life, that she knows that we will listen to her, and we will work together to help her figure out what that is, and then hopefully give her the language to further describe any other symptoms she may have.

So for us, something simple that was humorous at first was sparkly pants- Mm … is turning into ocular [00:14:00] migraines. Another, we need to investigate the eyes a little bit more, but sh- her sparkly pants were actually benign seizures that she was having. Mm-hmm. And it’s, I think that it’s, even today on the ride home, she was talking about, “What did the doctor say about my brain, Mom?”

I was confused, and it, like, hers, her teacher was asking her questions about it as her medical plan came in. She was like, “What did she say about my brain?” And it’s been enough where she’s, I think she’s understanding that because adults have listened to something that she was trying really hard to communicate, that we didn’t just brush off, “Oh, she’s being five,” that we listened to her, and w- and we listened to, like I said, the consistency of it, and that, yep, this is something serious.

Let’s help you find the words to explain what is happening. 

Luisa Recchia: So let me ask for those who are listening, what do you wish the medical professionals, educators, friends, or [00:15:00] even extended families better understood- what it’s like raising a child with th- these needs. What … You just described it, but how can we repeat it so that they’re listening that can help that other child who’s experiencing what your daughter is?

Sam: I think as what … It’s one of the things I take as an educator and also as a mom is that understanding that children, their voices matter, and that as an adult, not everyone hears what children are saying, and that it’s important as somebody who, as you are advocating for your patients, your children, your students, that sometimes you need to use your voice.

Your … I always say, like, I hear what you are saying. If others are not hearing it, I will be the grown-up voice that says that louder, and that I will always be the loudest voice in the room [00:16:00] when it comes to my children and when it comes to my students in advocating and support for them.” That I real- And what I really wish and what I am so grateful for when it comes to the care team we’ve developed with my daughter is they do listen to her, that when I called and said, “She has sparkly pants,” they immediately took that seriously and saw her that day, and w- we were, we were on a path to, to find an answer, that they knew

And in that appointment, they weren’t talking to me. They were talking to her and letting her explain those symptoms and what was going on with her body. So it was my voice that was able to get her the appointment and start the conversation, but it was because the adults in the room gave my daughter a chance to speak and be heard that we got to a solution and a treatment plan for her.

Luisa Recchia: Yeah, so important [00:17:00] to listen to those voices or at least give them a chance, right? 

Sam: Yeah, and I, I’ve, I’ve heard it said before is, children are not adults in little bodies. That they are, when it comes to this, what they’re experiencing may not be the same symptoms I’m experiencing, and they don’t have the language and background and experiences that I have as an adult to explain or find reason with what is happening, and that we have to listen, I always say listen with our ears and our hearts to try to find the answer.

That I know what she’s saying isn’t making sense logically, and I’m hearing it, but I know in my mom heart that she is trying to tell me something, and let’s, let’s get her in a room with people who will listen to what she is saying so we can find an answer and I can support her 

Luisa Recchia: Nice. [00:18:00] Nice. You call your platform Mrs. Chaos. Is that correct? 

Sam: Mrs. Chaos. Chaos. 

Luisa Recchia: Yes, 

Sam: yeah. 

Luisa Recchia: How did that name and that idea behind it come about? 

Sam: I think that one of, like I said, the perfect example of when I described my daughter’s birth and her post NICU journey- Mm-hmm … and, like, detaching my retina when she was discharged from the NICU is like that moment of chaos.

Like, everything is just happening around you, and it’s just the Murphy’s Law. If something’s gonna go wrong, if you … it … Something is gonna go wrong, and it’s … But I think Mrs. Chaos, for me, has been life as a mom who is, I, you know, I work full time, I have three young children, a- I’m trying to manage a household, and now even a little small business, that the chaos is that’s the beauty of what life is.

And that even though I’m overwhelmed, and my [00:19:00] children are, just came in the door from dance class, and, you know, they’re, they’re already running around and doing things, and I’m trying to have a conversation with a grown-up. It’s finding the joy in that, and sharing in the humor and this … There’s something just so wonderful about watching children grow, that taking a moment to, with Mrs. Chaos, I like to take a moment and share those stories so that it is and I s- with humor so that people know, like, it is okay to be frustrated and overwhelmed, and be exhausted, and it’s also okay to love every moment of it well, as well.

Luisa Recchia: It sounds like humor is a big part of how you share your family’s experience. Um, how has your daughter helped you cope with the fear and frustration and uncertainty that you have to live with? 

Sam: We, so we always joke, my husband and I, that when she was born and the way she came into this world the first couple of [00:20:00] weeks were really tough, touch and go.

And we, you know, there is something that there’s a trauma that will always stay with me, watching my daughter be resuscitated. And I, we ever in those moments and in those dark days, we always used to say, like, “She was born and she’s gonna fight because one day she’s gonna be something and do something.”

And now, as a stereotypical middle child, we always laugh. She is gonna s- she is gonna be something and do something, and it’s either gonna be a superhero or a super villain, and we gotta make sure we’re pointing her in the right way. Um, so she really is somebody who just lives for the moment and lives for just, sh- she has like with, she just leans towards and goes towards whatever is making her happy, she goes full force.

Um, even just yesterday, one of the stories that I’ll, I’ll be sharing on TikTok soon is it was her first day of school, and she filled up [00:21:00] a whole lot of Ziploc bags full of water, and I was like, “What are you doing?” She goes, “I’m trying to show you be responsible so we can get a fish one day.” And I was like, “Well, we’re not getting a fish.

Like, we, there’s enough chaos happening. We don’t need to add animals.” And she left one of the bags of water on the ground, and I stepped on it on my carpet, and all this water goes everywhere. And I, not in a moment of calm, was like, “This wasn’t very responsible. If this was a fish, I would’ve stepped on it.”

And she just looks, she goes, “Well, it wasn’t very responsible of you to step on my fish.” And I was like… and that’s her. That’s her. She is so quick-witted, but like understands like the comedic timing and almost irony in her little six-year-old world that in a moment where my socks and my pants are wet, I’m laughing ’cause she is, she just truly was like, “Well, no, if that was my fish, that wasn’t a responsible choice, Mom.

You stepped on it.” And like called me out on the silliness that it was. So she’s just somebody [00:22:00] who has really taught us in what my husband and I describe as our darkest days. She really lives for finding joy and finding the light, and we love taking her lead on that.

Luisa Recchia: What would you say to a parent who feels guilty for laughing or experiencing happiness while their family’s going through something difficult?

Sam: I have shared a few stories on, uh, my platforms that I unfortunately last, last year suddenly unexpectedly lost my mom. Um, I was talking to her on the phone at 6:00. She said, “Ah, I’m feeling really tired.” We were actually supposed to get together, and she said, “Why don’t we skip tonight and you can come over for a steak tomorrow?”

And then at 7:00 my sister called me to get there quick, something was going on with Mom, and she passed away at 8:00 that night from a heart attack in my childhood home. And it had just been two hours ago that I had talked to my [00:23:00] mom about dinner plans the next day, and now my mom is gone. And I remember looking at my dad and, you know, it’s all the ambulance and there’s, there’s so, there’s just chaos happening.

And I, I looked at him, and everyone left, and there was a moment of quiet. And I was like, “Dad Mom’s still in the house. What do we do? Is this like Weekend at Bernie’s?” And we, and it was in the moments of that we just started laughing, and it sounds absolutely crazy to, moments after my mom passed, to have me and my siblings laughing, like, with her gone.

But I, in those moments that, if, I obviously was devastated, and I still have periods where I can’t imagine life that I’m managing life without my mom. But- It [00:24:00] is okay to find joy. And there, there wasn’t a lot of joy to find on that day, but knowing I still had my dad, I still had my siblings, and that I had a family unit that was gonna keep us going forward for the rest of time, um, and that bond came because of what my mom had taught us, that it was okay to continue living life the way my mom would have wanted.

So even as I look at times that my husband and I unfortunately have had, um, multiple miscarriages and long years of infertility and, you know, our daughter’s premature birth, and those are really heavy things. But that doesn’t mean I have to be that, I don’t have to live that all the time, and that it is okay to [00:25:00] celebrate the little victories, and it is okay to celebrate the joy in life.

Two things can be true at the same time. You can be sad and grieving or stressed and overwhelmed and have fear, but also find joy in what is happening right now as well.

Luisa Recchia: So what made you decide to begin sharing your family’s story online? 

Sam: It was like I said, my, my middle child, I… She’s always been chaos. And, um, it was last summer, I work with there’s a gap in age with where I work, so most of the people I, my coworkers that I hang out with and socialize regularly, their children are a bit older.

They’re seniors or, like, in high school, and I’m dealing with elementary aged young children. And then we were sitting at somebody’s house, uh, just on their back patio, and everyone [00:26:00] was complaining about, “Oh, I had to go to take this one to lacrosse practice, and that one had to go to field hockey, and then this one had to go to baseball.”

And a coworker had turned to me and she said, “Just wait, it gets so much worse when they get older.” And that morning, my five-year-old, this was only about six weeks after my mom had passed, she, my mom had this, like, healing crystal. And when my mom passed, it was one of the things, it was outside, I, like, took, and I kept it on my nightstand.

And my five-year-old was laying with me, my middle, and she was kissing it and going, “I miss Nana,” and she was kissing the crystal. And I don’t even know how, she sat up and she goes, “Mom, I swallowed it.” She swallowed the healing crystal. So as my coworker was talking about the having to take her kids to lacrosse practice and work, and then to get to the study group, I go, “Okay, tomorrow come over to my house.

Bring your second favorite colander, because I’m sifting through my [00:27:00] daughter’s poop trying to find a rock she swallowed.” And, like, it had gotten a lot of laughs, and I, I think it was just one of those times where they’re like, “Oh yeah, I forgot about those moments of raising young children.” And that was the first TikTok I really shared with storytelling, and I told it in that manner of just my daughter swallowed a rock, and now here I am with my second favorite colander looking for it.

Um, and so that, it started just as that. And, like I said, my coworker- my, my coworkers that I shared that story with and we joked with, they are extra attached to my middle child because we were working together during COVID when I had the, when I had her, and now she goes to the district that, that we all work at.

So they get to see, hear the stories from our, from my coworkers as well. But they’re extra I don’t wanna say it, but yeah, attached. And they’re also able to find that extra [00:28:00] joy in it. So I started sharing almost as to, to mock my coworkers, and now they, they kind of mock me back of, like, you go make your little TikToks,” and then and things like that.

So it, it was just something that- I was like in the moment, I was like, “You know what? I know there’s other moms out there who are hearing, ‘Just wait, it gets worse.'” But I’m like, “You know what? Sifting through poop, it’s not real great right now either,” so

Luisa Recchia: I love that. So tell us about that. How can listeners, um, you know, where do they go? Where do they, how can they hear about you and, um, what is the audience that you’re hearing from or what are, what are people looking for? 

Sam: Yeah, so my, I am on most social media platforms. I’m on Facebook, TikTok, uh, Instagram, and YouTube. My handle is mrschaos212. 212 is my classroom number. So when I look at what I share on the internet, I share about [00:29:00] the, the mom life, what it’s like to come home from work and have to cook dinner and, and get the backpacks packed. But I also share about the balance of being a working mom, that it is something that, you know, I have to go to work all day.

And then I do share some stories of what it’s like in the education world right now that I, you know, I, as I said before, I wanna make sure that my voice, my grown-up voice, is being used to, if it’s the loudest in the room, I wanna make sure I am saying things that are important to the ones that I love.

And advocating for education is how I’ve been using my platform as well. So you can hear about the chaos of the daily life that is being a mom and having young children, and then 212 is my, is kind of what I call my passion of sharing about life as, as a teacher and [00:30:00] having a, you know, I’ve shared stories of running into my I call them my grown-up baby students, that like I, I run into my middle schoolers when they’re adults, and I’ve had, I’ve had doctors who are former students.

And I’m just like it blows my mind. So I share a lot about that as well. 

Luisa Recchia: It sounds like your, uh, students are very fortunate and lucky to have you just listening to the little bit that you’ve shared.

What is the difference you hope that you can make through Mrs. Chaos?

Sam: There’s the downside of sharing your life on the internet is you open up your life to be critiqued. And there are times when I share what is a good-hearted story. And when I share stories, a lot of the time in order to make them humorous, I remove the parts of the story that may develop, explain the context a little bit more, but I’ll remove it for the humor.

And [00:31:00] that will open me up to criticism. And when that happens, I often like to take a break and I’ll do a couple videos where I can explain the educational psychology or the child developmental psychology behind that moment, and how it was actually handled in full context. Because to me, when I look at my life as a mom and I look at my life as a teacher, I wanna make sure voices are heard.

And I, I want my students to know that I am advocating for them and with them. And when I look at Mrs. Chaos and when I have those moments of I’ve been calling ’em class chats lately or I’ll e- I’ll say like, “Hey, class,” and I’ll explain something. I want grown-ups to hear what kids are trying to say, and why it’s so important as adults and grown-ups in their lives that we make [00:32:00] decisions with their thoughts and their hearts and their social and emotional wellbeing in mind.

So I hope that as I share humor, that the undertone of the stories I tell are really how I am hearing what children are saying, and how I can, and showing how I’ve been advocating for them. So I hope that this channel, and, and I hope when I share, it inspires others to hear young children, and to hear what kids have to say.

Luisa Recchia: Beautiful. Beautiful. Is there anything, Sam, that I haven’t asked that you feel is important to share with our listening audience today? 

Sam: No, I, I think, like, if I, if I had to think what’s the most important, like you said, that just asked is, I know this, there’s a lot of people in pediatrics that are involved in, in this organization is, is just to make [00:33:00] sure we’re, we are listening and advocating for kids.

I think that they’re our future, and I, every day when I am at work and I am working with kids, I am so inspired for what is to come with this generation that I think that we should really be truly proud and truly blessed that we are in places that we get to listen to kids. 

Luisa Recchia: Yeah.

They are our future. 

Sam: Which there it is. I just shooed my child away. I’m like, “Hang on one second.” Right? She’s trying to eat ice cream before dinner. I’m not… Like, she can have the ice cream sandwich after dinner. 

Luisa Recchia: But she can always try. Yeah. She can always try. Oh, goodness.

Sam: Yeah, she doesn’t quite know it yet. Yeah. But she, she’s like I said, she’s either gonna be, she’s either gonna be a lawyer or in jail, and we always joke and say, “Well, just hopefully the, the crimes are white collar,” so but she is, she is somebody who, um, she [00:34:00] really brings a lot of joy to a lot of people.

Luisa Recchia: Sam, thank you for sharing your family’s story with such honesty, humor, and heart. Your experience reminds us that resilience doesn’t mean pretending everything is easy. Sometimes it means asking more questions, advocating even when you’re exhausted, accepting help, finding people who understand, and allowing yourself to laugh in the middle of the chaos.

I know your story will help other parents and families feel seen, encouraged, and a little less alone. To our listeners, thank you for joining us for this episode of Through Our Eyes. To learn more about the Pediatric Retinal Research Foundation, find family resources, or listen to additional episodes, please visit our website at PRRF.org.

Until next time, remember that even when the journey is unexpected, you don’t have to navigate it alone.

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