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A baby in a car seat with a patch over one eye

The Loneliness of an Orphan Disease Diagnosis

A rare disease is defined as any disease that affects a small percentage of the population, often fewer than 200,000 people in the United States. …

PRRFDicembre 16, 2022

Two smiling sisters standing in front of a bush

Blog Personal Stories

There’s Something About Twins

There seems to be something about twins that never fails to draw intrigued glances and the question, “Identical or fraternal?” Some claim it is that famed…

Jennifer Z.Novembre 16, 2022

Three smiling brothers, one visually impaired, and a dog on a couch

Blog Parent Stories Personal Stories

Sibling Revelry

“If you want to know how to treat a child with special needs, look at their sibling…they will show you.” I have no idea who…

Stephanie BrennellOttobre 16, 2022

Visually impaired teenager sitting on a stone wall in front of plants

Blog Parent Stories Personal Stories

The Resilient Miracle

I was fifteen. It was the first day of my freshman year of high school. I was nervous, overwhelmed, and stressed out. I wasn't confident…

Jules H.Settembre 16, 2022

Visually impaired young mad sitting in a commercial kitchen

Blog Personal Stories

Fish Ladder Story: Tanis Hooker

Tanis has never let his blindness prevent him from moving up the fish ladder of life. He learns from every experience and uses each opportunity…

Patrick J. Droste MS MDAgosto 19, 2022

A young boy in red glasses and blue overalls lays on a couch on top of a brown dog

Blog Parent Stories

What to Expect When You Don’t Know What to Expect

Sit back and be amazed. Your child is a gift. All children are amazing and special in their own ways. All children are unique. We have three boys, and…

Stephanie BrennellLuglio 16, 2022

"Adversity has the effect of eliciting talents, which in prosperous circumstances would have lain dormant." - Quintus Horatius Flaccus

Blog Personal Stories

Seeing the Possibilities

The Roman poet Horace once said, “Adversity has the effect of eliciting talents which in prosperous circumstances would have lain dormant.” Ever since I stumbled…

Jennifer Z.Giugno 16, 2022

Mother and visualy impaired teenage son standing in front of a campfire at a campsite

Blog Personal Stories

Fish Ladder Story: Brandon Werner

Brandon has never let his visual impairment keep him from “moving up the fish ladder of life”. He never stays at one level very long. …

Patrick J. Droste MS MDMaggio 16, 2022

Blog Personal Stories

Uncovering Creativity: Miles Scharfenberg

Miles has been swimming up the Fish Ladder of Life since the very beginning. He continues to rise up the ladder to higher waters; Miles…

Patrick J. Droste MS MDAprile 16, 2022

Visually impaired brother and sister standing outside in black graduation caps and gowns

Blog Personal Stories

The Fish Ladder of Life for the Visually Challenged Individual: Michael & Elizabeth

Despite laser treatment at 3 months of age, Michael and Elizabeth’s ROP progressed at a very aggressive rate and multiple surgeries were performed on each…

Patrick J. Droste MS MDMarzo 16, 2022