Blogue
Uma coleção de histórias pessoais, artigos e notícias da comunidade PRRF.
A evolução de 70 anos do tratamento da visão: A história inspiradora de Jeanne sobre a vida com baixa visão
Thanks to brilliant and visionary men and women, like those at PRRF, and the wonderful services PRRF provides, we will always have new opportunities and...
Lisa LoVasco21 de março de 2023
Navegar no liceu e na universidade com o seu filho adulto jovem com visão reduzida
The “experts” never say anything about how your role as a parent changes when your child becomes a young adult. Out of all the books...
Chuck Walls31 de janeiro de 2023
A solidão de um diagnóstico de doença órfã
A rare disease is defined as any disease that affects a small percentage of the population, often fewer than 200,000 people in the United States. ...
PRRFdezembro 16, 2022
Há qualquer coisa nos gémeos
There seems to be something about twins that never fails to draw intrigued glances and the question, “Identical or fraternal?” Some claim it is that famed...
Jennifer Z.novembro 16, 2022
Folia de irmãos
“If you want to know how to treat a child with special needs, look at their sibling…they will show you.” I have no idea who...
Stephanie Brennell16 de outubro de 2022
O Milagre da Resiliência
I was fifteen. It was the first day of my freshman year of high school. I was nervous, overwhelmed, and stressed out. I wasn't confident...
Jules H.16 de setembro de 2022
História da escada de peixe: Tanis Hooker
Tanis has never let his blindness prevent him from moving up the fish ladder of life. He learns from every experience and uses each opportunity...
Patrick J. Droste MS MDagosto 19, 2022
O que esperar quando não se sabe o que esperar
Sit back and be amazed. Your child is a gift. All children are amazing and special in their own ways. All children are unique. We have three boys, and...
Stephanie Brennelljulho 16, 2022
Seeing the Possibilities
The Roman poet Horace once said, “Adversity has the effect of eliciting talents which in prosperous circumstances would have lain dormant.” Ever since I stumbled...
Jennifer Z.Junho 16, 2022
Fish Ladder Story: Brandon Werner
Brandon has never let his visual impairment keep him from “moving up the fish ladder of life”. He never stays at one level very long. ...
Patrick J. Droste MS MDMaio 16, 2022
Uncovering Creativity: Miles Scharfenberg
Miles has been swimming up the Fish Ladder of Life since the very beginning. He continues to rise up the ladder to higher waters; Miles...
Patrick J. Droste MS MDAbril 16, 2022
The Fish Ladder of Life for the Visually Challenged Individual: Michael & Elizabeth
Despite laser treatment at 3 months of age, Michael and Elizabeth’s ROP progressed at a very aggressive rate and multiple surgeries were performed on each...
Patrick J. Droste MS MDMarço 16, 2022
















