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小児網膜研究財団

Our Mission

希望をつむぐ:小児網膜疾患の家族支援と治療法の追求

The mission of the Pediatric Retinal Research Foundation (PRRF) is to raise awareness of pediatric retinal diseases, drive research, and support the community of affected individuals and their families.

A young boy in red glasses and blue overalls lays on a couch on top of a brown dog
Smiling young woman with sunglasses, a blue t-shirt and jeans holding a fishing rod and a fish at the end of the line

Our Vision

We aspire to transform lives through cure-focused translational research, and to empower those impacted by rare pediatric retinal diseases to realize their full potential.

私たちの価値観

The Foundation is guided by six core values that define who we are and how we strive to make an impact: Excellence, Innovation, Advocacy, Engagement, Inclusion, and Compassion. These values shape our actions and reflect our commitment to serving our community with integrity and purpose.

Smiling visually impaired 9 month old girl sitting in front a giant giraffe stuffed animal

チーム紹介

Board of Director Officers

Dr. Antonio Capone
President

Antonio Capone, Jr., M.D.

Dr. Capone is President of the PRRF. His primary role is developing PRRF’s strategic plan while making sure its program and operations support its mission on a daily basis. Dr. Capone is an internationally recognized clinician, surgeon and educator. He has authored or co-authored over 300 publications in peer-reviewed medical journals, book chapters, and publications from clinical trials. He is currently a Professor of Biomedical Sciences at Oakland University, and Professor at the European School for Advanced Studies in Ophthalmology, Lugano, Switzerland. Dr. Capone is recognized in particular as a surgical innovator. He also serves as Co-President of Associated Retinal Consultants (ARC), the leading academically-oriented private retina practice in the world, and has held a number of leadership positions in ophthalmology over the last 25 years. He completed his undergraduate and medical degrees at Brown University, his residency at the University of Pittsburgh, and fellowship at Emory University.
Robert Toal
Treasurer & Secretary

Robert E. Toal

The original founder of Diversified Portfolios, Inc. in 1993, Bob has more than 25 years of experience helping families and individuals meet the challenges of investing to ensure a secure financial future. He served as president of the company until 2023. Diversified Portfolios, Inc. is a fee-only investment advisory firm, primary focused on retirement planning and investment management.

A graduate of University of Detroit High School, Albion College (Economics) and the University of Detroit (JD and MBA combined program), Bob is a CFA charter holder, an attorney and a member of the CFA Society of Detroit. Bob and his wife, Anne, have two great kids, Ellen and Daniel. Bob is recently retired and enjoys skiing, cycling and tennis.

Alex Dobin
Vice President of Operations

Alex J. Dobin

Alex Dobin is the director and head of the HR business advisor team at NextEra Energy, Inc. (NYSE: NEE), a leading clean energy company. Dobin is responsible for leading a team of human resources professionals that support the over 40 business units that comprise NextEra Energy, Inc., located across the United States and Canada. In this role, he is responsible for leading daily operational HR functions and supporting the strategic initiatives of the enterprise. His focuses include policy development, data & analytical review and solution deployment, talent & succession planning, cultural & engagement strategy, organizational design, and change management leadership. He provides counsel regarding employment & labor relations, leadership development, training, mergers & acquisitions, targeted recruiting, and organizational effectiveness. In addition to his work at PRRF, Alex is a director of the board of directors for CareerSource Palm Beach County, Florida, a director of the board for Families First of Palm Beach County, a governor of the board of governors for Leadership Palm Beach County, president of the Olympia Master Association, president of the Easton Village Association and a graduate of Leadership Palm Beach County, class of 2021.
Dr. Kimberly Drenser
Vice President of Medical Affairs

Kimberly Drenser, M.D., Ph.D.

Dr. Drenser is dedicated to promoting translational research in retina, making benchtop to bedside a reality. She has an extensive background in retinal research, which started with her PhD thesis (completed at the University of Florida Neuroscience Center and UC San Francisco Beckmen Vision Center) which created a gene therapy for an inherited retinal degeneration. The foundation of this gene therapy has been developed into an FDA approved therapy which is now available for a rare blinding disease. While completing her ophthalmology residency at the Jules Stein Eye Institute followed by a vitreoretinal fellowship at Associated Retinal Consultants she continued to develop patient focused retinal research for therapeutic development. Her development of the Ophthalmic Biobank allowed for the discovery of the role of Wnt-signaling, and specifically norrin, in eye development and retinal regeneration. Dr. Drenser has over 100 publications in peer-reviewed medical journals, book chapters, and publications from clinical trials, including Nature and Proceedings of the National Academy of Science. She continues to treat children with blinding retinal disease and extend research opportunities to collaborators at Oakland University and other Institutions.

Board of Directors

Dr. Mohamed Al-Shabrawey

Mohamed Al‑Shabrawey, M.D., Ph.D.

Dr. Al-Shabrawey is an expert on the study of diabetic retinopathy, a major cause of blindness worldwide, and has published more than 65 refereed articles on the disease in the past 20 years. His research funding since 2007 has included major grants from the National Eye Institute and the American Heart Association, and he currently possesses an NIH R01 grant that extends to 2024. Dr. Al-Shabrawey has garnered both national and international recognition for his work, as evidenced by his frequent invitations to speak at the Association for Research in Vision and Ophthalmology (ARVO) and the International Society of Eye Research (ISER). His research area is perfect for stimulating future scientific collaboration with ERI basic science and clinical vision researchers. In addition, Dr. Al-Shabrawey has exhibited an impressive record of mentoring graduate students, postdoctoral fellows and medical students in his laboratory. He was appointed to Director of the Oakland University Eye Research Institute in August 2021.
Dr. Patrick Droste

Patrick J. Droste, M.S., M.D.

Patrick J. Droste, M.S., M.D. graduated medical school from Wayne State University in 1980, completed his residency in ophthalmology at Henry Ford Hospital, and a fellowship in Pediatric ophthalmology at Indiana University. He returned to Michigan in 1987 to begin his practice in Grand Rapids, Michigan now known as Pediatric Ophthalmology, P.C. Dr. Droste is a Clinical Professor at Michigan State University College of Human Medicine in the Departments of Neurology, Ophthalmology, and Surgery as well as a Clinical Professor at Michigan State University College of Osteopathy in the department of Neurology and Ophthalmology. He has served as past president of the Michigan Society of Eye Surgeons and Physicians, and serves on many committees for county, state and national medical/ophthalmology societies. Dr. Droste has published numerous articles in peer review journals, presentations and courses, and lectured internationally. He actively participates in clinical research at the community level with our local hospitals, and at the national level as a principal investigator for Pediatric Eye Disease Investigator Group (PEDIG). Philanthropy has been an important focus throughout Dr. Droste’s career. He created the Visually Impaired Sports Day which has occurred annually since 2002 in sponsorship with Spectrum Health, was a charter board member of Project Access which provides free medical services to the disadvantaged in Kent County, has cared for indigent children of third world countries through Heal the Children, and was a charter member of the ROPARD Board.
Nicole Giudici

Nicole Giudici, M.S., P.A.-C

Nicole Guidici joined the PRRF Board of Directors and immediately jumped to action by growing the Podcast, participating in the Research Advisory Committee, as well as helping the Fundraising Committee establish clear goals and programs. Nicole’s professional background includes work as a physician assistant and, most recently, as a Senior Medical Science Liaison with expertise in neurology. Nicole loves to run and just completed her first marathon in fall 2024.
Dr. Matthew Trese

Matthew G. Trese, D.O.

Dr. Trese is an adult and pediatric vitreoretinal surgeon at Associated Retinal Consultant, and assistant professor at Oakland University’s William Beaumont School of Medicine.

Dr. Trese is an active member of the American Academy of Ophthalmology, American Society of Retina Specialists, Association for Research in Vision and Ophthalmology, and Michigan Society of Eye Physicians and Surgeons. He graduated from Michigan State University with a Doctorate in Osteopathic Medicine and Boston University School of Medicine with a Master of Art’s in Medical Sciences. Additionally, he is the son of PRRF Founder, Dr. Michael Trese, and is passionate about honoring his father’s legacy through his involvement in the Foundation.

Chuck Walls

Charles S. Walls IV

Chuck Walls first came to Associated Retinal Consultants PC (ARC) in 2007 after his son, Collin, was diagnosed with X-Linked Juvenile Retinoschisis. He is passionate about treatment for this retinal disease, and wanted to do more, so he joined the VRRF Board in 2014. More recently he is excited to work with families who have children with retinal diseases as the Family Development Chair on the PRRF Board. Chuck is a retired US Army Lieutenant Colonel and a combat veteran aviator with multiple combat and peace keeping tours. Chuck is also an Experimental Test Pilot, and after his retirement in 2009, continues to serve the US Army as a Department of the Army Civilian working as the Chief, Engineering Design and Analysis and still flies as an Experimental Test Pilot conducting tests for the Aviation Applied Technology Directorate at Fort Eustis, VA.. LTC(R) Walls received a Bachelors degree in Aerospace Engineering from the United States Military Academy in 1989, and a Masters degree in Engineering Management from University of Central Florida in 2002, and a Masters degree in Computer Resources and Information Management from Webster University in 2002. Chuck, and his wife, Donna, also have experience as Co-Founders and Co-Directors of an educational non-profit 501(c)(3) foundation for 10 years.
Kay White

Kay White

Kay White is a community volunteer who began to work with ROPARD when she chaired its first fund-raisers, The Artful Garden". She joined the Board of ROPARD in 1996. Kay has been active in many organizations, including the DSO, American Heart, American Lung and especially Common Ground where she has answered the crisis line for 34 years and served 4 terms as Board Chair. Kay graduated from Colby College with a B.A. She is on the Advisory Board of The Art Experience and is a member of two garden clubs. She also loves to play tennis and is an avid gardener.

Team Members

Stephanie Saville
Foundation Manager

Stephanie E. Saville

Stephanie passion is partnering with community leaders to ignite meaningful and impactful change for the mission’s they care about most. With over 20 years working for nonprofit organizations, Stephanie is the guiding force behind millions raised for local and national organizations. Stephanie has led the Hope for Vision Walk since 2019 and is now serving as Foundation Manager for PRRF. She is also the owner of a nonprofit consulting company, Guiding Force Consulting, LLC. Stephanie is a proud graduate of Davenport University with a Master’s of business Administration and currently serves on the board of Guiding Harbor.
Luisa Recchia
Community Outreach Coordinator

Luisa Recchia

Luisa Recchia's passion for adding value to people who add value to others finds herself at the Pediatric Retinal Research Foundation. For years, she has worked with both for profit and non-profit organizations. Growing up in a large extended family, the phrase "it takes a village to raise a child" brings a lot of meaning. If one child suffered, we were all impacted and all pitched in and rolled up our sleeve. Luisa and her husband Jim have three adult sons working hard to pass on family traditions. As an entrepreneur, Luisa works as a coach for business owners and leadership teams helping them get what they want from their business.
Heather Tull
Administrative Coordinator

Heather Tull

ヘザーは非営利業界で17年以上、さまざまな管理業務に携わってきた。情熱的で献身的、そして思慮深いアプローチでクライアントと接する。プロセスの合理化、クライアントの事務的ニーズの予測、PRRFチームの整理整頓とデータ管理を得意とする。また、アウトリーチイベントや業界会議でもヘザーを見かけることがある。ヘザーが同僚の生活に大きな変化をもたらしていないときは、夫と充実した時間を過ごしたり、暴れん坊の愛犬マレーと遊んだりしている。

創立者

Dr. Michael Trese
(1946 - 2022)

マイケル・T・トレース医学博士

In 1990 Michael T. Trese, MD, founded what is now known as the Pediatric Retinal Research Foundation.

Dr. Trese is widely considered the father of modern pediatric vitreoretinal surgery. In a career spanning more than 40 years, he has been credited with significant breakthroughs and has taught many of today’s leading pediatric retina specialists.

In the 1980s, he revolutionized pediatric vitreoretinal surgery with his concept of lens-sparing vitrectomy for the treatment of complex pediatric retinal detachment due to advanced retinopathy of prematurity (ROP). His techniques have also been applied to diseases such as familial exudative vitreoretinopathy, juvenile X-linked retinoschisis and Coats disease. He led the way to the first FDA-approved drug for pharmacologic vitreolysis.

In addition to his achievements as a medical doctor, his impact on families world-wide through the work of the Foundation is significant. He championed early translational research in the quest for cures, was instrumental in bringing to reality the only research lab dedicated solely to pediatric retinal research and provided hope to countless families. We will continue this work in honor of our Founder, friend and colleague.

沿革

1990

ビジョン・リサーチ-ロパード財団(Vision Research-ROPARD Foundation、以下「VRRF」)は、早産やその他の網膜疾患によって引き起こされる小児の弱視や失明の問題を解消することを目的とした国内初の組織として設立されました。小児網膜研究財団(PRRF)は、ROPARD財団を基盤としています。

2006

The Foundation is registered as an independent 501c3 nonprofit organization through the IRS and State of Michigan.

2011

The Pediatric Retinal Research Laboratory (PRRL) opened at Oakland University’s Eye Research Institute. It is the first laboratory of its kind solely dedicated to translational research of pediatric retinal diseases with a goal of bringing research from “bench to bedside” through new therapies.

2019

Inaugural Hope for Vision Walk campaign kicks off in metro Detroit bringing together 100 families raising funds and awareness for rare retinal diseases.

2019

PRRF sponsors first Ophthalmic Biobank to bank tissue from patients with a wide variety of pediatric vitreoretinal disorders.

2020

PRRF donors fund the purchase of an Optical coherence tomography OCT hand-held device to test infants and children.

2022

PRRF、個人と家族を支援するための無料会議、ワークショップ、ウェビナー、ポッドキャストを開始。

2024

PRRF、希少網膜疾患研究のための$20,000試験的助成金を発表。

2025

PRRFは、個人と家族のためのプログラムとサービスの拡大、研究イニシアチブの継続、財団の能力拡大を目標に掲げている。

PRRFの使命を追求することの重要性

マイケル・トレース医師は、PRRFの使命を追求することが、子どもたち、家族、そして未来の患者たちの未来にとって非常に重要である理由を語っている。

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