について
小児網膜研究財団
Our Mission
希望をつむぐ：小児網膜疾患の家族支援と治療法の追求
The mission of the Pediatric Retinal Research Foundation (PRRF) is to raise awareness of pediatric retinal diseases, drive research, and support the community of affected individuals and their families.
Our Vision
We aspire to transform lives through cure-focused translational research, and to empower those impacted by rare pediatric retinal diseases to realize their full potential.
私たちの価値観
The Foundation is guided by six core values that define who we are and how we strive to make an impact: Excellence, Innovation, Advocacy, Engagement, Inclusion, and Compassion. These values shape our actions and reflect our commitment to serving our community with integrity and purpose.
チーム紹介
Board of Director Officers
Dr. Capone is President of the PRRF. His primary role is developing PRRF’s strategic plan while making sure its program and operations support its mission on a daily basis. Dr. Capone is an internationally recognized clinician, surgeon and educator. He has authored or co-authored over 300 publications in peer-reviewed medical journals, book chapters, and publications from clinical trials. He is currently a Professor of Biomedical Sciences at Oakland University, and Professor at the European School for Advanced Studies in Ophthalmology, Lugano, Switzerland. Dr. Capone is recognized in particular as a surgical innovator. He also serves as Co-President of Associated Retinal Consultants (ARC), the leading academically-oriented private retina practice in the world, and has held a number of leadership positions in ophthalmology over the last 25 years. He completed his undergraduate and medical degrees at Brown University, his residency at the University of Pittsburgh, and fellowship at Emory University.
Alex J. Dobin is the senior director for Human Resources at NextEra Energy, Inc. (NYSE: NEE), a leading clean energy company. In his role, Dobin oversees strategic people capital initiatives for Florida Power & Light Company as well as NextEra Energy’s marketing, communications and corporate affairs division; he was appointed to the role in October 2025.
Prior to his current role, Dobin served as a director & senior HR partner, where he was responsible for providing counsel regarding employment & labor relations, leadership development, training, mergers & acquisitions, succession planning, targeted recruiting, and organizational effectiveness for multiple business units with corporate and operational responsibilities. Prior to that, Dobin was the director and head of the HR business advisory team, responsible for HR employee relations functions across the US and Canada. Prior to that role, Dobin has held multiple roles with expanded scope during his tenure at NextEra Energy, Inc.
Prior to joining NextEra Energy in 2015, Dobin served as the corporate HR manager for North American Programs at Office Depot, Inc., responsible for HR initiatives, program design and implementation with the U.S. retail division. He also worked for the Target Corporation in multiple roles with increasing responsibility in the HR, investigation, safety and assets protection divisions, ultimately serving as a senior manager for HR and market resource leader.
Dobin serves as board vice president of Families First of Palm Beach County, vice president of operations of the Pediatric Retinal Research Foundation and a director of CareerSource Palm Beach County. He holds a bachelor’s degree in business administration and management from Florida Atlantic University and is a graduate of Leadership Palm Beach County, class of 2021 where he also served as a board governor (2022-2024). Dobin resides in Palm Beach County, Florida with his wife and two children.
Dr. Drenser is dedicated to promoting translational research in retina, making benchtop to bedside a reality. She has an extensive background in retinal research, which started with her PhD thesis (completed at the University of Florida Neuroscience Center and UC San Francisco Beckmen Vision Center) which created a gene therapy for an inherited retinal degeneration. The foundation of this gene therapy has been developed into an FDA approved therapy which is now available for a rare blinding disease. While completing her ophthalmology residency at the Jules Stein Eye Institute followed by a vitreoretinal fellowship at Associated Retinal Consultants she continued to develop patient focused retinal research for therapeutic development. Her development of the Ophthalmic Biobank allowed for the discovery of the role of Wnt-signaling, and specifically norrin, in eye development and retinal regeneration. Dr. Drenser has over 100 publications in peer-reviewed medical journals, book chapters, and publications from clinical trials, including Nature and Proceedings of the National Academy of Science. She continues to treat children with blinding retinal disease and extend research opportunities to collaborators at Oakland University and other Institutions.
Board of Directors
Dr. Al-Shabrawey is an expert on the study of diabetic retinopathy, a major cause of blindness worldwide, and has published more than 65 refereed articles on the disease in the past 20 years. His research funding since 2007 has included major grants from the National Eye Institute and the American Heart Association, and he currently possesses an NIH R01 grant that extends to 2024. Dr. Al-Shabrawey has garnered both national and international recognition for his work, as evidenced by his frequent invitations to speak at the Association for Research in Vision and Ophthalmology (ARVO) and the International Society of Eye Research (ISER). His research area is perfect for stimulating future scientific collaboration with ERI basic science and clinical vision researchers. In addition, Dr. Al-Shabrawey has exhibited an impressive record of mentoring graduate students, postdoctoral fellows and medical students in his laboratory. He was appointed to Director of the Oakland University Eye Research Institute in August 2021.
Patrick J. Droste, M.S., M.D. graduated medical school from Wayne State University in 1980, completed his residency in ophthalmology at Henry Ford Hospital, and a fellowship in Pediatric ophthalmology at Indiana University. He returned to Michigan in 1987 to begin his practice in Grand Rapids, Michigan now known as Pediatric Ophthalmology, P.C. Dr. Droste is a Clinical Professor at Michigan State University College of Human Medicine in the Departments of Neurology, Ophthalmology, and Surgery as well as a Clinical Professor at Michigan State University College of Osteopathy in the department of Neurology and Ophthalmology. He has served as past president of the Michigan Society of Eye Surgeons and Physicians, and serves on many committees for county, state and national medical/ophthalmology societies. Dr. Droste has published numerous articles in peer review journals, presentations and courses, and lectured internationally. He actively participates in clinical research at the community level with our local hospitals, and at the national level as a principal investigator for Pediatric Eye Disease Investigator Group (PEDIG). Philanthropy has been an important focus throughout Dr. Droste’s career. He created the Visually Impaired Sports Day which has occurred annually since 2002 in sponsorship with Spectrum Health, was a charter board member of Project Access which provides free medical services to the disadvantaged in Kent County, has cared for indigent children of third world countries through Heal the Children, and was a charter member of the ROPARD Board.
Nicole Guidici joined the PRRF Board of Directors and immediately jumped to action by growing the Podcast, participating in the Research Advisory Committee, as well as helping the Fundraising Committee establish clear goals and programs. Nicole’s professional background includes work as a physician assistant and, most recently, as a Senior Medical Science Liaison with expertise in neurology. Nicole loves to run and just completed her first marathon in fall 2024.
Chuck Walls first came to Associated Retinal Consultants PC (ARC) in 2007 after his son, Collin, was diagnosed with X-Linked Juvenile Retinoschisis. He is passionate about treatment for this retinal disease, and wanted to do more, so he joined the VRRF Board in 2014. More recently he is excited to work with families who have children with retinal diseases as the Family Development Chair on the PRRF Board. Chuck is a retired US Army Lieutenant Colonel and a combat veteran aviator with multiple combat and peace keeping tours. Chuck is also an Experimental Test Pilot, and after his retirement in 2009, continues to serve the US Army as a Department of the Army Civilian working as the Chief, Engineering Design and Analysis and still flies as an Experimental Test Pilot conducting tests for the Aviation Applied Technology Directorate at Fort Eustis, VA.. LTC(R) Walls received a Bachelors degree in Aerospace Engineering from the United States Military Academy in 1989, and a Masters degree in Engineering Management from University of Central Florida in 2002, and a Masters degree in Computer Resources and Information Management from Webster University in 2002. Chuck, and his wife, Donna, also have experience as Co-Founders and Co-Directors of an educational non-profit 501(c)(3) foundation for 10 years.
Kay White is a community volunteer who began to work with ROPARD when she chaired its first fund-raisers, The Artful Garden". She joined the Board of ROPARD in 1996. Kay has been active in many organizations, including the DSO, American Heart, American Lung and especially Common Ground where she has answered the crisis line for 34 years and served 4 terms as Board Chair. Kay graduated from Colby College with a B.A. She is on the Advisory Board of The Art Experience and is a member of two garden clubs. She also loves to play tennis and is an avid gardener.
Adam Zuckerman is a shareholder in the New Orleans, Louisiana office of the law firm of Baker Donelson Bearman Caldwell & Berkowitz, PC. His practice focuses on complex commercial and class action litigation, and energy and environmental law.
In his private life, Adam and his wife are the proud parents of two daughters, one of whom has Retinopathy of Prematurity. He became passionate about the community affected by pediatric retinal diseases when his family benefited first-hand, some two decades ago, from the support and education provided by PRRF’s predecessor ROPARD. Over the years, he has followed advancements in the diagnosis and treatment of pediatric retinal diseases, been fortunate to have access to world-class healthcare, and witnessed the strengths and needs of families affected by pediatric retinal diseases. He is excited to continue the efforts of others who have come before him to fulfill the mission of PRRF.
チーム紹介
With over 20 years in the nonprofit sector, Stephanie brings a deep commitment to community collaboration and mission-driven leadership. Since 2019, she has led the Hope for Vision Walk, and is now serving as PRRF's executive director.
Stephanie also owns two businesses, Guiding Force Consulting and Mission Moments Event Planning, where she supports nonprofits with Salesforce solutions and implementing events. She holds a Master's of Business Administration from Davenport University, serves on the board of Guiding Harbor, and is a member of Impact 100 Oakland County. Stephanie lives in metro Detroit, Michigan with her husband and their American bulldog, Lily.
Mission-driven at her core, Monica knew early on that she wanted her career to make a meaningful impact in our world. After volunteering in Costa Rica and Ghana as a teenager, she pursued her degree in International Relations at the University of Connecticut and master’s of public administration at Baruch College. She has over a decade of experience as a fundraiser, event planner, and strategic community builder for organizations such as Keep a Child Alive and CARE USA. Her favorite part of the job is connecting with inspiring people, from generous donors to resilient beneficiaries whose powerful stories inspire her each day. Monica lives outside of Philadelphia, PA with her husband and two children.
Luisa Recchia's passion for adding value to people who add value to others finds herself at the Pediatric Retinal Research Foundation. For years, she has worked with both for profit and non-profit organizations. Growing up in a large extended family, the phrase "it takes a village to raise a child" brings a lot of meaning. If one child suffered, we were all impacted and all pitched in and rolled up our sleeve. Luisa and her husband Jim have three adult sons working hard to pass on family traditions. As an entrepreneur, Luisa works as a coach for business owners and leadership teams helping them get what they want from their business.
ヘザーは非営利業界で17年以上、さまざまな管理業務に携わってきた。情熱的で献身的、そして思慮深いアプローチでクライアントと接する。プロセスの合理化、クライアントの事務的ニーズの予測、PRRFチームの整理整頓とデータ管理を得意とする。また、アウトリーチイベントや業界会議でもヘザーを見かけることがある。ヘザーが同僚の生活に大きな変化をもたらしていないときは、夫と充実した時間を過ごしたり、暴れん坊の愛犬マレーと遊んだりしている。
創立者
沿革
PRRFの使命を追求することの重要性
マイケル・トレース医師は、PRRFの使命を追求することが、子どもたち、家族、そして未来の患者たちの未来にとって非常に重要である理由を語っている。
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