About
小儿视网膜研究基金会
我们的使命
捍卫希望：支持家庭并寻求治疗小儿视网膜疾病的方法
The mission of the Pediatric Retinal Research Foundation (PRRF) is to raise awareness of pediatric retinal diseases, drive research, and support the community of affected individuals and their families.
我们的愿景
We aspire to transform lives through cure-focused translational research, and to empower those impacted by rare pediatric retinal diseases to realize their full potential.
我们的价值观
基金会以六项核心价值观为指导，这六项价值观定义了我们的身份以及我们努力产生影响的方式：卓越、创新、倡导、参与、包容和仁爱。这些价值观决定了我们的行动，反映了我们以诚信和宗旨服务社区的承诺。
Our Team
董事会成员
卡彭博士是 PRRF 的总裁。他的主要职责是制定 PRRF 的战略计划，同时确保 PRRF 的计划和运营支持其日常使命。卡彭博士是国际公认的临床医师、外科医生和教育家。他在同行评审的医学期刊、书籍章节和临床试验出版物上发表或合著了 300 多篇论文。他目前是奥克兰大学生物医学科学教授和瑞士卢加诺欧洲眼科高级研究学院教授。卡彭博士是公认的手术创新者。他还是全球领先的学术型私人视网膜诊所 Associated Retinal Consultants (ARC) 的联席总裁，并在过去 25 年中担任过多个眼科领域的领导职务。他在布朗大学完成了本科和医学学位，在匹兹堡大学完成了住院医师培训，并在埃默里大学完成了研究员培训。
Alex J. Dobin is the senior director for Human Resources at NextEra Energy, Inc. (NYSE: NEE), a leading clean energy company. In his role, Dobin oversees strategic people capital initiatives for Florida Power & Light Company as well as NextEra Energy’s marketing, communications and corporate affairs division; he was appointed to the role in October 2025.
Prior to his current role, Dobin served as a director & senior HR partner, where he was responsible for providing counsel regarding employment & labor relations, leadership development, training, mergers & acquisitions, succession planning, targeted recruiting, and organizational effectiveness for multiple business units with corporate and operational responsibilities. Prior to that, Dobin was the director and head of the HR business advisory team, responsible for HR employee relations functions across the US and Canada. Prior to that role, Dobin has held multiple roles with expanded scope during his tenure at NextEra Energy, Inc.
Prior to joining NextEra Energy in 2015, Dobin served as the corporate HR manager for North American Programs at Office Depot, Inc., responsible for HR initiatives, program design and implementation with the U.S. retail division. He also worked for the Target Corporation in multiple roles with increasing responsibility in the HR, investigation, safety and assets protection divisions, ultimately serving as a senior manager for HR and market resource leader.
Dobin serves as board vice president of Families First of Palm Beach County, vice president of operations of the Pediatric Retinal Research Foundation and a director of CareerSource Palm Beach County. He holds a bachelor’s degree in business administration and management from Florida Atlantic University and is a graduate of Leadership Palm Beach County, class of 2021 where he also served as a board governor (2022-2024). Dobin resides in Palm Beach County, Florida with his wife and two children.
Drenser 博士致力于促进视网膜领域的转化研究，实现从台式到床边的转化。她拥有丰富的视网膜研究背景，其博士论文（在佛罗里达大学神经科学中心和加州大学旧金山分校贝克曼视力中心完成）的起点就是为一种遗传性视网膜变性创造一种基因疗法。这种基因疗法的基础已发展成为一种获得美国食品及药物管理局批准的疗法，目前可用于治疗一种罕见的致盲疾病。在朱尔斯坦眼科研究所完成眼科住院医师培训后，她又在联合视网膜顾问公司（Associated Retinal Consultants）获得了玻璃体视网膜研究奖学金，并继续开展以患者为中心的视网膜研究，以促进治疗的发展。她建立的眼科生物库发现了 Wnt 信号，特别是诺林在眼睛发育和视网膜再生中的作用。Drenser 博士在同行评审的医学期刊上发表了 100 多篇论文、书籍章节和临床试验出版物，包括《自然》和《美国国家科学院院刊》。她继续治疗患有致盲性视网膜疾病的儿童，并为奥克兰大学和其他机构的合作者提供研究机会。
董事会
Al-Shabrawey 博士是糖尿病视网膜病变研究方面的专家，糖尿病视网膜病变是全球失明的主要原因之一，在过去 20 年里，他发表了超过 65 篇有关该疾病的论文。自 2007 年以来，他获得的研究资金包括美国国家眼科研究所和美国心脏协会的主要资助，目前他还获得了美国国立卫生研究院的 R01 资助，该资助将持续到 2024 年。Al-Shabrawey 博士的工作获得了国内和国际的认可，他经常受邀在美国视觉与眼科研究协会（ARVO）和国际眼科研究协会（ISER）上发表演讲就是证明。他的研究领域非常适合促进未来与 ERI 基础科学和临床视觉研究人员的科学合作。此外，Al-Shabrawey 博士在其实验室指导研究生、博士后和医科学生方面成绩斐然。2021 年 8 月，他被任命为奥克兰大学眼科研究所所长。
Patrick J. Droste, M.S., M.D. 1980 年毕业于韦恩州立大学医学院，在亨利福特医院完成眼科住院医师培训，并在印第安纳大学完成小儿眼科研究。1987 年，他回到密歇根州，在密歇根州大急流城开始了他的执业生涯，即现在的 "小儿眼科医院"。Droste 博士是密歇根州立大学人类医学院神经内科、眼科和外科的临床教授，也是密歇根州立大学骨科医学院神经内科和眼科的临床教授。他曾担任密歇根眼科外科医生和内科医生协会前任主席，并在县级、州级和国家级医学/眼科协会的多个委员会任职。Droste 博士在同行评审期刊、演讲和课程中发表了大量文章，并在国际上进行过演讲。他与当地医院一起积极参与社区一级的临床研究，并作为儿科眼病研究小组（PEDIG）的主要研究员参与国家级研究。在德罗斯特博士的职业生涯中，慈善事业一直是他关注的重点。他创立了视障人士运动日，自 2002 年以来每年都与 Spectrum Health 合作举办该运动日；他还是 Project Access 的特许董事会成员，该项目为肯特郡的弱势群体提供免费医疗服务；他还通过 Heal the Children 关爱第三世界国家的贫困儿童；他还是 ROPARD 董事会的特许成员。
Nicole Guidici joined the PRRF Board of Directors and immediately jumped to action by growing the Podcast, participating in the Research Advisory Committee, as well as helping the Fundraising Committee establish clear goals and programs. Nicole’s professional background includes work as a physician assistant and, most recently, as a Senior Medical Science Liaison with expertise in neurology. Nicole loves to run and just completed her first marathon in fall 2024.
2007 年，Chuck Walls 的儿子 Collin 被诊断出患有 X-连锁青少年视网膜裂孔症后，他第一次来到 Associated Retinal Consultants PC (ARC)。他对这种视网膜疾病的治疗充满热情，并希望做得更多，因此于 2014 年加入了 VRRF 董事会。最近，他作为 PRRF 董事会的家庭发展主席，很高兴能与视网膜疾病患儿的家庭一起工作。查克是一名退役的美国陆军中校，也是一名身经百战的飞行员，曾多次参加战斗和维和行动。查克还是一名实验试飞员，2009 年退役后继续作为陆军部文职人员为美国陆军服务，担任工程设计和分析主管，并仍作为实验试飞员为弗吉尼亚州尤斯提斯堡的航空应用技术局进行测试飞行。华尔斯中校于 1989 年获得美国军事学院航空航天工程学士学位，2002 年获得中佛罗里达大学工程管理硕士学位，2002 年获得韦伯斯特大学计算机资源与信息管理硕士学位。查克和他的妻子唐娜还曾担任一家非营利性 501(c)(3) 教育基金会的联合创始人和联合董事长达 10 年之久。
Kay White is a community volunteer who began to work with ROPARD when she chaired its first fund-raisers, The Artful Garden". She joined the Board of ROPARD in 1996. Kay has been active in many organizations, including the DSO, American Heart, American Lung and especially Common Ground where she has answered the crisis line for 34 years and served 4 terms as Board Chair. Kay graduated from Colby College with a B.A. She is on the Advisory Board of The Art Experience and is a member of two garden clubs. She also loves to play tennis and is an avid gardener.
Adam Zuckerman is a shareholder in the New Orleans, Louisiana office of the law firm of Baker Donelson Bearman Caldwell & Berkowitz, PC. His practice focuses on complex commercial and class action litigation, and energy and environmental law.
In his private life, Adam and his wife are the proud parents of two daughters, one of whom has Retinopathy of Prematurity. He became passionate about the community affected by pediatric retinal diseases when his family benefited first-hand, some two decades ago, from the support and education provided by PRRF’s predecessor ROPARD. Over the years, he has followed advancements in the diagnosis and treatment of pediatric retinal diseases, been fortunate to have access to world-class healthcare, and witnessed the strengths and needs of families affected by pediatric retinal diseases. He is excited to continue the efforts of others who have come before him to fulfill the mission of PRRF.
Our Team
With over 20 years in the nonprofit sector, Stephanie brings a deep commitment to community collaboration and mission-driven leadership. Since 2019, she has led the Hope for Vision Walk, and is now serving as PRRF's executive director.
Stephanie also owns two businesses, Guiding Force Consulting and Mission Moments Event Planning, where she supports nonprofits with Salesforce solutions and implementing events. She holds a Master's of Business Administration from Davenport University, serves on the board of Guiding Harbor, and is a member of Impact 100 Oakland County. Stephanie lives in metro Detroit, Michigan with her husband and their American bulldog, Lily.
Mission-driven at her core, Monica knew early on that she wanted her career to make a meaningful impact in our world. After volunteering in Costa Rica and Ghana as a teenager, she pursued her degree in International Relations at the University of Connecticut and master’s of public administration at Baruch College. She has over a decade of experience as a fundraiser, event planner, and strategic community builder for organizations such as Keep a Child Alive and CARE USA. Her favorite part of the job is connecting with inspiring people, from generous donors to resilient beneficiaries whose powerful stories inspire her each day. Monica lives outside of Philadelphia, PA with her husband and two children.
路易莎-雷奇亚（Luisa Recchia）在儿科视网膜研究基金会（Pediatric Retinal Research Foundation）工作，她热衷于为他人创造价值。多年来，她一直与营利性和非营利性组织合作。在一个大家庭中长大，"养育一个孩子需要一个村庄 "这句话有很多含义。如果一个孩子受到伤害，我们所有人都会受到影响，都会伸出援手，挽起袖子。露易莎和丈夫吉姆有三个成年儿子，他们努力传承家族传统。作为一名企业家，路易莎担任企业主和领导团队的教练，帮助他们从企业中获得想要的东西。
Heather 在非营利行业从事各种行政工作已超过 17 年。在与客户的每一次互动中，她都充满热情，尽职尽责，考虑周全。她擅长简化流程，预测客户的行政需求，使 PRRF 团队井井有条，并在数据管理方面步入正轨。您还会在外联活动和行业会议上看到 Heather 的身影。当 Heather 没有为同事们的生活带来巨大改变时，她会和丈夫一起度过美好时光，并和她的爱犬 Murray 玩耍。
我们的创始人
Our History
履行 PRRF 使命的重要性
迈克尔-特雷斯博士（Dr. Michael Trese）分享了追求 PRRF 的使命为何对儿童、家庭和未来患者的未来如此重要。
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