Eye health is something most of us take for granted, until we can't.
The New York Times recently rounded up advice from leading ophthalmologists on what they wish their patients knew. The tips are simple. Our community understands the stakes.
For the families PRRF serves, navigating diagnoses like familial exudative vitreoretinopathy (FEVR), retinopathy of prematurity (ROP), Stickler syndrome, and more, routine eye care education is just the beginning.
We turned the article into a swipeable carousel, with each tip connected to what it means for the pediatric retinal disease community specifically.
Knowledge is the first step toward advocacy and support.
#EyeHealth #PediatricRetina #RareDisease #PRRF #Ophthalmology #PatientAdvocacy #FEVR #ROP #PediatricVisionLoss #HealthEducation
We are constantly moved by the mothers in our community. Thank you for showing up and making sure no family walks this road alone.
To the moms who sat in waiting rooms, who became researchers and advocates, all so that their child never had to face it alone, we see you!
On Mother’s Day, revisit this mother-daughter conversation between Lisa and Aria, who turned a rare disease diagnosis into a community of love, support, hope and celebration: prrf.org/finding-hope-and-community-lisa-and-arias-journey-with-prrf/
A pharmaceutical on the cusp of clinical trials. Students becoming ophthalmologists. Pilot grants turning early ideas into funded research. This is what your support makes possible. 🔬
In the May Minute With the President, Antonio Capone Jr MD gives families, supporters, and the rare disease community an inside look at the research engine powering the Pediatric Retinal Research Foundation (filmed live on the morning of the 2026 Family Connection Conference).
Happy Birthday Week to two of our all star team members: Luisa and Monica!! 🎂
Luisa's work is at the core of our community services. She runs our podcast and works with the Family Advisory Committee to make sure that the voices of those we work with are considered in everything we do.
Monica has been instrumental in organizing the 2026 Hope for Vision Walk extravaganza and growing our organization's capacity so we can provide more offerings to the community we serve.
You each deserve a lot of celebration for the meaningful contributions you've made at PRRF and for the unique and wonderful people you are. Luisa and Monica, we wish you a very happy birthday!
Share your birthday wishes in the comments 🎈🎉
© 2026 Pediatric Retinal Research Foundation.
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