Tropeçar uma milha nos nossos sapatos
We were never given a choice, but if we had been, I would choose Sean all over again, exactly as he is. Because even though...
Stephanie Brennell25 de março de 2023
Navegar no liceu e na universidade com o seu filho adulto jovem com visão reduzida
The “experts” never say anything about how your role as a parent changes when your child becomes a young adult. Out of all the books...
Chuck Walls31 de janeiro de 2023
A solidão de um diagnóstico de doença órfã
A rare disease is defined as any disease that affects a small percentage of the population, often fewer than 200,000 people in the United States. ...
PRRFdezembro 16, 2022
Folia de irmãos
“If you want to know how to treat a child with special needs, look at their sibling…they will show you.” I have no idea who...
Stephanie Brennell16 de outubro de 2022
O Milagre da Resiliência
I was fifteen. It was the first day of my freshman year of high school. I was nervous, overwhelmed, and stressed out. I wasn't confident...
Jules H.16 de setembro de 2022
O que esperar quando não se sabe o que esperar
Sit back and be amazed. Your child is a gift. All children are amazing and special in their own ways. All children are unique. We have three boys, and...
Stephanie Brennelljulho 16, 2022
Focus on Advocacy
As soon as we faced the realization that Juliana would live a life of complete darkness, our first worry was how she would be able...
Karen HooglandSetembro 15, 2021
The Halbert’s Story
Presley has been learning how to walk with a cane and will soon begin learning Braille. She amazes us every day with how easily she...
The HalbertsAgosto 15, 2021
Meet Board member Charles “Chuck” Walls
When Chuck’s third child, Collin, sat too close to the TV, he and his wife thought that was merely unusual. The day after Christmas, when...
PRRFJulho 15, 2021
A Letter From Bev Hughes
My husband Rob and I were absolutely thrilled to welcome our third baby girl Rachael into our family. When she was 5 weeks old, we...
PRRFMaio 15, 2021