Join us in celebrating Rare Disease Day

February 28, 2025

All month we’ll feature stories from the rare pediatric retinal disease community, facts about rare retinal diseases, and highlight resources available to children, young adults and families.

What is Rare Disease Day?

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

How Can You Help?

• Share your story with us (button below) to help educate and spread awareness about rare pediatric retinal diseases

• Spread awareness by sharing our social media posts and adding why rare disease awareness is important to you

• Change your virtual meeting background, email signature, social media profile frames and banners for the month of February. Click here for pre-made graphics.

• Take a selfie of you and your family and tag us on social #PRRF #RareDiseaseDay