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About

小儿视网膜研究基金会

我们的使命

捍卫希望:支持家庭并寻求治疗小儿视网膜疾病的方法

The mission of the Pediatric Retinal Research Foundation (PRRF) is to raise awareness of pediatric retinal diseases, drive research, and support the community of affected individuals and their families.

A young boy in red glasses and blue overalls lays on a couch on top of a brown dog
Smiling young woman with sunglasses, a blue t-shirt and jeans holding a fishing rod and a fish at the end of the line

我们的愿景

We aspire to transform lives through cure-focused translational research, and to empower those impacted by rare pediatric retinal diseases to realize their full potential.

我们的价值观

基金会以六项核心价值观为指导,这六项价值观定义了我们的身份以及我们努力产生影响的方式:卓越、创新、倡导、参与、包容和仁爱。这些价值观决定了我们的行动,反映了我们以诚信和宗旨服务社区的承诺。

Smiling visually impaired 9 month old girl sitting in front a giant giraffe stuffed animal

Our Team

董事会成员

Dr. Antonio Capone
主席

小安东尼奥-卡彭医学博士

卡彭博士是 PRRF 的总裁。他的主要职责是制定 PRRF 的战略计划,同时确保 PRRF 的计划和运营支持其日常使命。卡彭博士是国际公认的临床医师、外科医生和教育家。他在同行评审的医学期刊、书籍章节和临床试验出版物上发表或合著了 300 多篇论文。他目前是奥克兰大学生物医学科学教授和瑞士卢加诺欧洲眼科高级研究学院教授。卡彭博士是公认的手术创新者。他还是全球领先的学术型私人视网膜诊所 Associated Retinal Consultants (ARC) 的联席总裁,并在过去 25 年中担任过多个眼科领域的领导职务。他在布朗大学完成了本科和医学学位,在匹兹堡大学完成了住院医师培训,并在埃默里大学完成了研究员培训。
Robert Toal
Treasurer & Secretary

Robert E. Toal

The original founder of Diversified Portfolios, Inc. in 1993, Bob has more than 25 years of experience helping families and individuals meet the challenges of investing to ensure a secure financial future. He served as president of the company until 2023. Diversified Portfolios, Inc. is a fee-only investment advisory firm, primary focused on retirement planning and investment management.

A graduate of University of Detroit High School, Albion College (Economics) and the University of Detroit (JD and MBA combined program), Bob is a CFA charter holder, an attorney and a member of the CFA Society of Detroit. Bob and his wife, Anne, have two great kids, Ellen and Daniel. Bob is recently retired and enjoys skiing, cycling and tennis.

Alex Dobin
Vice President of Operations

Alex J. Dobin

Alex Dobin 是领先的清洁能源公司 NextEra Energy 公司(纽约证券交易所代码:NEE)的总监兼人力资源业务顾问团队负责人。Dobin 负责领导一支人力资源专业团队,为 NextEra Energy 公司遍布美国和加拿大的 40 多个业务部门提供支持。在这个职位上,他负责领导人力资源部门的日常运作,并为企业的战略举措提供支持。他的工作重点包括政策制定、数据与分析审查和解决方案部署、人才与继任规划、文化与参与战略、组织设计和变革管理领导。他还就雇佣与劳动关系、领导力发展、培训、兼并与收购、有针对性的招聘以及组织效率等问题提供咨询服务。除在 PRRF 工作外,Alex 还是佛罗里达州棕榈滩郡 CareerSource 董事会董事、棕榈滩郡 Families First 董事会董事、棕榈滩郡领导力理事会理事、奥林匹亚大师协会主席、伊斯顿村协会主席以及棕榈滩郡领导力 2021 届毕业生。
Dr. Kimberly Drenser
Vice President of Medical Affairs

Kimberly Drenser, M.D., Ph.D.

Drenser 博士致力于促进视网膜领域的转化研究,实现从台式到床边的转化。她拥有丰富的视网膜研究背景,其博士论文(在佛罗里达大学神经科学中心和加州大学旧金山分校贝克曼视力中心完成)的起点就是为一种遗传性视网膜变性创造一种基因疗法。这种基因疗法的基础已发展成为一种获得美国食品及药物管理局批准的疗法,目前可用于治疗一种罕见的致盲疾病。在朱尔斯坦眼科研究所完成眼科住院医师培训后,她又在联合视网膜顾问公司(Associated Retinal Consultants)获得了玻璃体视网膜研究奖学金,并继续开展以患者为中心的视网膜研究,以促进治疗的发展。她建立的眼科生物库发现了 Wnt 信号,特别是诺林在眼睛发育和视网膜再生中的作用。Drenser 博士在同行评审的医学期刊上发表了 100 多篇论文、书籍章节和临床试验出版物,包括《自然》和《美国国家科学院院刊》。她继续治疗患有致盲性视网膜疾病的儿童,并为奥克兰大学和其他机构的合作者提供研究机会。

董事会

Dr. Mohamed Al-Shabrawey

Mohamed Al‑Shabrawey, M.D., Ph.D.

Al-Shabrawey 博士是糖尿病视网膜病变研究方面的专家,糖尿病视网膜病变是全球失明的主要原因之一,在过去 20 年里,他发表了超过 65 篇有关该疾病的论文。自 2007 年以来,他获得的研究资金包括美国国家眼科研究所和美国心脏协会的主要资助,目前他还获得了美国国立卫生研究院的 R01 资助,该资助将持续到 2024 年。Al-Shabrawey 博士的工作获得了国内和国际的认可,他经常受邀在美国视觉与眼科研究协会(ARVO)和国际眼科研究协会(ISER)上发表演讲就是证明。他的研究领域非常适合促进未来与 ERI 基础科学和临床视觉研究人员的科学合作。此外,Al-Shabrawey 博士在其实验室指导研究生、博士后和医科学生方面成绩斐然。2021 年 8 月,他被任命为奥克兰大学眼科研究所所长。
Dr. Patrick Droste

Patrick J. Droste, M.S., M.D.

Patrick J. Droste, M.S., M.D. 1980 年毕业于韦恩州立大学医学院,在亨利福特医院完成眼科住院医师培训,并在印第安纳大学完成小儿眼科研究。1987 年,他回到密歇根州,在密歇根州大急流城开始了他的执业生涯,即现在的 "小儿眼科医院"。Droste 博士是密歇根州立大学人类医学院神经内科、眼科和外科的临床教授,也是密歇根州立大学骨科医学院神经内科和眼科的临床教授。他曾担任密歇根眼科外科医生和内科医生协会前任主席,并在县级、州级和国家级医学/眼科协会的多个委员会任职。Droste 博士在同行评审期刊、演讲和课程中发表了大量文章,并在国际上进行过演讲。他与当地医院一起积极参与社区一级的临床研究,并作为儿科眼病研究小组(PEDIG)的主要研究员参与国家级研究。在德罗斯特博士的职业生涯中,慈善事业一直是他关注的重点。他创立了视障人士运动日,自 2002 年以来每年都与 Spectrum Health 合作举办该运动日;他还是 Project Access 的特许董事会成员,该项目为肯特郡的弱势群体提供免费医疗服务;他还通过 Heal the Children 关爱第三世界国家的贫困儿童;他还是 ROPARD 董事会的特许成员。
Nicole Giudici

妮可-朱蒂奇,医学硕士,公共行政-C

Nicole Guidici joined the PRRF Board of Directors and immediately jumped to action by growing the Podcast, participating in the Research Advisory Committee, as well as helping the Fundraising Committee establish clear goals and programs. Nicole’s professional background includes work as a physician assistant and, most recently, as a Senior Medical Science Liaison with expertise in neurology. Nicole loves to run and just completed her first marathon in fall 2024.
Dr. Matthew Trese

Matthew G. Trese, D.O.

Dr. Trese is an adult and pediatric vitreoretinal surgeon at Associated Retinal Consultant, and assistant professor at Oakland University’s William Beaumont School of Medicine.

Dr. Trese is an active member of the American Academy of Ophthalmology, American Society of Retina Specialists, Association for Research in Vision and Ophthalmology, and Michigan Society of Eye Physicians and Surgeons. He graduated from Michigan State University with a Doctorate in Osteopathic Medicine and Boston University School of Medicine with a Master of Art’s in Medical Sciences. Additionally, he is the son of PRRF Founder, Dr. Michael Trese, and is passionate about honoring his father’s legacy through his involvement in the Foundation.

Chuck Walls

Charles S. Walls IV

2007 年,Chuck Walls 的儿子 Collin 被诊断出患有 X-连锁青少年视网膜裂孔症后,他第一次来到 Associated Retinal Consultants PC (ARC)。他对这种视网膜疾病的治疗充满热情,并希望做得更多,因此于 2014 年加入了 VRRF 董事会。最近,他作为 PRRF 董事会的家庭发展主席,很高兴能与视网膜疾病患儿的家庭一起工作。查克是一名退役的美国陆军中校,也是一名身经百战的飞行员,曾多次参加战斗和维和行动。查克还是一名实验试飞员,2009 年退役后继续作为陆军部文职人员为美国陆军服务,担任工程设计和分析主管,并仍作为实验试飞员为弗吉尼亚州尤斯提斯堡的航空应用技术局进行测试飞行。华尔斯中校于 1989 年获得美国军事学院航空航天工程学士学位,2002 年获得中佛罗里达大学工程管理硕士学位,2002 年获得韦伯斯特大学计算机资源与信息管理硕士学位。查克和他的妻子唐娜还曾担任一家非营利性 501(c)(3) 教育基金会的联合创始人和联合董事长达 10 年之久。
Kay White

Kay White

Kay White is a community volunteer who began to work with ROPARD when she chaired its first fund-raisers, The Artful Garden". She joined the Board of ROPARD in 1996. Kay has been active in many organizations, including the DSO, American Heart, American Lung and especially Common Ground where she has answered the crisis line for 34 years and served 4 terms as Board Chair. Kay graduated from Colby College with a B.A. She is on the Advisory Board of The Art Experience and is a member of two garden clubs. She also loves to play tennis and is an avid gardener.

Team Members

Stephanie Saville
基金会经理

斯蒂芬妮-E-萨维尔

斯蒂芬妮热衷于与社区领袖合作,为他们最关心的使命带来有意义、有影响的变化。斯蒂芬妮在非营利组织工作了 20 多年,是为当地和全国性组织筹集数百万资金的幕后推手。自 2019 年以来,斯蒂芬妮一直领导着 "希望光明行 "活动,现任 PRRF 基金会经理。她还是非营利咨询公司 Guiding Force Consulting, LLC 的所有人。斯蒂芬妮毕业于达文波特大学(Davenport University),获得工商管理硕士学位。
Luisa Recchia
社区外联协调员

路易莎-雷奇亚

路易莎-雷奇亚(Luisa Recchia)在儿科视网膜研究基金会(Pediatric Retinal Research Foundation)工作,她热衷于为他人创造价值。多年来,她一直与营利性和非营利性组织合作。在一个大家庭中长大,"养育一个孩子需要一个村庄 "这句话有很多含义。如果一个孩子受到伤害,我们所有人都会受到影响,都会伸出援手,挽起袖子。露易莎和丈夫吉姆有三个成年儿子,他们努力传承家族传统。作为一名企业家,路易莎担任企业主和领导团队的教练,帮助他们从企业中获得想要的东西。
Heather Tull
行政协调员

希瑟-图尔

Heather 在非营利行业从事各种行政工作已超过 17 年。在与客户的每一次互动中,她都充满热情,尽职尽责,考虑周全。她擅长简化流程,预测客户的行政需求,使 PRRF 团队井井有条,并在数据管理方面步入正轨。您还会在外联活动和行业会议上看到 Heather 的身影。当 Heather 没有为同事们的生活带来巨大改变时,她会和丈夫一起度过美好时光,并和她的爱犬 Murray 玩耍。

我们的创始人

Dr. Michael Trese
(1946 - 2022)

迈克尔-特雷斯医学博士

In 1990 Michael T. Trese, MD, founded what is now known as the Pediatric Retinal Research Foundation.

Dr. Trese is widely considered the father of modern pediatric vitreoretinal surgery. In a career spanning more than 40 years, he has been credited with significant breakthroughs and has taught many of today’s leading pediatric retina specialists.

In the 1980s, he revolutionized pediatric vitreoretinal surgery with his concept of lens-sparing vitrectomy for the treatment of complex pediatric retinal detachment due to advanced retinopathy of prematurity (ROP). His techniques have also been applied to diseases such as familial exudative vitreoretinopathy, juvenile X-linked retinoschisis and Coats disease. He led the way to the first FDA-approved drug for pharmacologic vitreolysis.

In addition to his achievements as a medical doctor, his impact on families world-wide through the work of the Foundation is significant. He championed early translational research in the quest for cures, was instrumental in bringing to reality the only research lab dedicated solely to pediatric retinal research and provided hope to countless families. We will continue this work in honor of our Founder, friend and colleague.

Our History

1990

视力研究-ROPARD 基金会("VRRF")是美国第一个致力于消除因早产和其他视网膜疾病造成的儿童低视力和失明问题的组织。儿科视网膜研究基金会(PRRF)建立在 ROPARD 基金会的基础之上。

2006

The Foundation is registered as an independent 501c3 nonprofit organization through the IRS and State of Michigan.

2011

The Pediatric Retinal Research Laboratory (PRRL) opened at Oakland University’s Eye Research Institute. It is the first laboratory of its kind solely dedicated to translational research of pediatric retinal diseases with a goal of bringing research from “bench to bedside” through new therapies.

2019

Inaugural Hope for Vision Walk campaign kicks off in metro Detroit bringing together 100 families raising funds and awareness for rare retinal diseases.

2019

PRRF sponsors first Ophthalmic Biobank to bank tissue from patients with a wide variety of pediatric vitreoretinal disorders.

2020

PRRF donors fund the purchase of an Optical coherence tomography OCT hand-held device to test infants and children.

2022

PRRF 推出免费会议、研讨会、网络研讨会和播客,为个人和家庭提供支持。

2024

PRRF 宣布为探索罕见视网膜疾病研究提供 $20,000 试验补助金机会。

2025

PRRF 确定的目标是:扩大针对个人和家庭的计划和服务;继续开展研究活动;以及提高基金会的能力。

履行 PRRF 使命的重要性

迈克尔-特雷斯博士(Dr. Michael Trese)分享了追求 PRRF 的使命为何对儿童、家庭和未来患者的未来如此重要。

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