Meet Calvin Ventresca BlogPersonal Stories Meet Calvin Ventresca Calvin thinks it is “cool” and “fun” to look ahead to new ways of managing his life. He is very open about his disability and…Kay WhiteNovember 15, 2021
Aria’s Journey BlogPersonal Stories Aria’s Journey Aria’s journey began in October 2014, at just two months old. Her parents noticed she was often having rapid eye movements and urged their pediatrician to…Pasquale and Lisa LoVascoOctober 15, 2021
Focus on Advocacy BlogParent StoriesPersonal Stories Focus on Advocacy As soon as we faced the realization that Juliana would live a life of complete darkness, our first worry was how she would be able…Karen HooglandSeptember 15, 2021
The Halbert’s Story BlogParent StoriesPersonal Stories The Halbert’s Story Presley has been learning how to walk with a cane and will soon begin learning Braille. She amazes us every day with how easily she…The HalbertsAugust 15, 2021
Meet Board member Charles “Chuck” Walls BlogParent StoriesPersonal Stories Meet Board member Charles “Chuck” Walls When Chuck’s third child, Collin, sat too close to the TV, he and his wife thought that was merely unusual. The day after Christmas, when…PRRFJuly 15, 2021
Meet Nate, A Budding Musician BlogPersonal Stories Meet Nate, A Budding Musician Nate loves music. he began to take piano lessons when he was 5 years old. He studies the solfége method of musical training period with…PRRFJune 15, 2021
A Letter From Bev Hughes BlogParent StoriesPersonal Stories A Letter From Bev Hughes My husband Rob and I were absolutely thrilled to welcome our third baby girl Rachael into our family. When she was 5 weeks old, we…PRRFMay 15, 2021
Letter From The Abbruzzese Family BlogParent StoriesPersonal Stories Letter From The Abbruzzese Family Both of our daughters have been diagnosed with FEVR. Therefore, you can understand why this foundation is dear to our hearts. We appreciated all of…PRRFApril 15, 2021